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So, I don't have RA, but a related arthritic disease called Ankylosing Spondylitis. Does anyone else have this? What meds and/or diet have you adopted since being diagnosed?
Hi wishing everyone on here a pain free day I like most of us have a pain free day occasionally and it's like winning the lottery when onwas on steroids I was so happy but they took me off them due to making more problems with the bones as you all probably know they thin the bones out
Hello! I also have AS. I've been on humira for about 6 years now. It seems to help quite a bit for me. I know I've heard of other people though that feel sick on it. It's helped me get a lot of mobility back. My flares aren't nearly as bad as they used to be. I haven't changed my diet at all so far. I do take Curcumin some of the time as well when I remember. I'm bad with pills!! Hang in there. I know it really sucks some of the time but we have to remember there are a lot of good days too!! The pain is hell though. Makes me angry at "God", life, the world and everyone and everything some days. You are not alone.
@A myRAteam Member Yes having an invisible disease can be very frustrating. These support groups have been super helpful for me in letting me know that I am not alone. We are all here for each other. I pray that you will find some relief soon and that you knee surgery will go smoothly.
Thankyou for the welcome :)
I awoke one morning back in the 90s without warning with a very swollen knee. Had fluid drained and cortisone shots, ouch , hot a little better at times but over the years till now, I've had Synovectomies and Arthroscopic surgeries to no avail. Tried every med known to mankind. Prednisone of course helped me thru these years. I'm looking at a knee replacement now in a few weeks. Both knees within a year. I think sometimes the Enbrel works, other times I think not, but maybe behind the scenes it is. The fatique is one of the biggest pains! Fingers are starting to get knobbly over the past year. Some toes are a bit worse for wear but mostly i can hide my disease. A lot of people don't understand so no point going into it :/ Life is a constant battle. Finding these groups have been a saviour :)
Hi @A myRAteam Member and @A myRAteam Member, thank you both for responding. I think I had at for a few years before I was actually diagnosed. I had been in a lot of pain for a while, but just attributed it to pain from being overweight. It wasn't until I had gone to the doctor for something unrelated, that I found out that my CRP levels were off the roof! My brother, who also has AS, couldn't believe that I had been living with that kind of pain for so long and never said anything, He said, "I guess women really do have a higher threshold for pain!", lol! But really, I was just ashamed. I thought I had not right to complain about being in pain since I was overweight, so I kept my mouth shut, I think for many, shame is something that we just don't talk about. But I think it is important. I am currently taking Sulfasalazine and Plaquenil daily (along with a bunch of supplements), and i inject Enbrel once a week, I definitely notice that it helps, though it does not eliminate the pain. I'm sorry, the Enbrel doesn't seem to be helping you. Perhaps you could talk to your doc about trying something else? I also don't have any physical deformities. I'm hoping the meds will slow down the progression so that I don't develop any.
Have either of you heard of the Auto Immune Protocal diet? My doctor thinks I should try it. It is a pretty restrictive elimination diet, I am considering after the holidays. You might look into that as well!
I am happy to meet you both! Praying for you!
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