I've noticed that many people with RA are able to work, exercise and be fairly functional. I struggle to drag myself through the day. I do some walking and low impact exercise 2 to 3 times a week but between feeling tired and muscle weakness, it's tough. Then on the days when I do exercise, I'm a zombie afterwards. I quit working 10 years ago because I wasn't able to function mentally after a few hours. I often forget words and lose track of conversations. So frustrating!
Is it just me?
I find that I am nearly always itching. At first, I thought it was my epilepsy medication, because each tablet has several side effects and itching is one of them. Does anyone else have alot of itching. I am on Methotrexate (as well as RA tablets, folic acid and raloxifene,and 19 epilepsy tablets,including Dilantin (phenytoin) but my neurologist knows that I take Methotrexate and said its ok
If you do get itching, do you use a cream etc?I am seeing her on the 6th and would appreciate any… read more
I don't know about 'nodules' but I have fibromyalgia and that produces also soft nodules or lumps in various places. I never thought about it till now. But I do have what I call a 'bump'. It's kind of… read more
I have been getting flare-ups of extreme itching that is so bad I have trouble sleeping. The flare-ups last for several weeks and have been going on for almost two years. I was diagnosed with RA about 7 years ago. The itching starts on the joints of my hands, feet, elbows and base of my neck. No problem with my knees as they were both replaced. Tried Benedryl, cold compresses, cool showers, moisturizers with no relief. Went off my RA meds, which I have been on for 5 years for several weeks, with… read more
I have reoccurring UTIs. My urologist put me on a prophylactic antibiotic-Keflex. For 11/2 years I didn’t have any UTIs but now my body has gotten resistance to Keflex. I was taken off and now I’ve had 2 UTIs in 3 weeks. The problem is I have to go off my Humira til the infection clears. I take my Humira then and a week later the infection is back. They run tests in between and the infection is gone but returns. It’s a vicious circle because my joints start flaring being off the Humira
They… read more
There's a group working hard on this Google Live UTI Free. You can get their emails. Good luck Hope you get answers and relief.
Anyone who has had covid, did you stop taking the methotrexate?
I did. I automatically stop methotrexate any time I have an infection - don’t wait for your doctor to tell you; sometimes they forget.
Also, because of my immune system and all the other meds I… read more
Has anyone had Covid and on Humira? Did you stop taking this whole recovering?
My primary doctor wants me to get out there and live my life but my rheumatologist wants me to be careful. By being careful she means not flying on an airplane because more than 1/2 the people don’t wear masks, don’t hang around really crowded areas unless I am masked, etc.. How do you all deal with this? My husband and I want to take a trip (we aren’t sure where to yet) for out 30th anniversary but we want to make sure I’m safe. Help!
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