Do you have symptoms that arent part of what is common or typical? If you have paid attention to the weird symptoms i want to hear them. Even if you arent sure its related. Like stuffy nose, hearing loss, weepy, no appetite, dry skin. Anything that shows a pattern or consistency during flares
Sometimes I feel like I can't think clearly or concentrate and I get very angry over every little thing. I usually end up getting so frustrated I have a meltdown. Sometimes I think I'm going crazy. Hopefully it's not just me!
I just got a posture cane and I'm not sure how I feel about it. Do any of you have one? Do you like it? In what circumstances do you use it over a standard cane? I don't use a cane all the time, just when I'm having a rough time.
I'm wondering how many years after diagnosis people were unable to continue working...in general of course. I know this is a progressive disease and just in the short few months since my diagnosis my body has gone down hill dramatically.
I'm not talking brain fog that clears. In the past I have been able to learn new things easily, block out noises, etc around me if I needed to read something & understand. But now I find this a lot harder. Some days worse than others. I have ADHD, that doesn't help this when it comes to things that I'm not particularly interested in. However, I've always been able to hyperfocus on things when they interest me, that is until about 5-6 years ago and I find it getting worse. It… read more