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I’ve been dx ‘ed for 10 yrs. and on Simponi infusion (only) every 8 weeks. I’m mobile and in pretty good shape, no pain but my hands seem to be less strong. My Dr. sees me 1x a year.

February 20
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A myRAteam Member

Thank you both for your input!

February 21
A myRAteam Member

My Dr doesn’t reach out to me. I always reach out to them. 😪 I’ve been trying for 2 months to get on Rituxan. Then they say not approved. My insurance can be tough. I’m tired. Today my wrists are hurting bad. Icing up as I type. Feel better to all. We r in this for the long haul. Take care!!

February 21
A myRAteam Member

Don't know what medication you are taking. I can only give information on the schedule that I am following with methotrexate. I have an open order for every three months to have a CBC to ensure the numbers are showing good. I always get results from my rheumatologist by end of day saying how things are standing.

February 21
myRAteam

How often should you see your rheumatologist and have blood tests while on Simponi?

The frequency of visits and testing depends on your disease activity and how stable your condition is. Since you're on a biologic like Simponi, routine monitoring is important even when you're feeling well.

Typical monitoring includes
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How often should you see your rheumatologist and have blood tests while on Simponi?

The frequency of visits and testing depends on your disease activity and how stable your condition is. Since you're on a biologic like Simponi, routine monitoring is important even when you're feeling well.

Typical monitoring includes:
- Regular blood tests to check white blood cell counts, kidney function, liver function, and lipids (cholesterol)
- Assessment of disease activity through physical exams and questionnaires about symptoms
- Evaluation of any side effects from medication

While annual visits might work for some people with stable disease, many rheumatologists prefer more frequent monitoring, especially for those on biologics. The weakening grip strength you're noticing could be a sign that warrants closer attention. Regarding imaging frequency, rheumatologists use various approaches. Some use imaging tests like X-rays, ultrasounds, MRI scans, or CT scans regularly to monitor disease progression and check for joint damage over time. Others may order imaging less frequently if your condition appears stable.

A myRAteam member shared: "MRIs are much more detailed. I have one on my hands every year to make sure the disease is under control."

Given your hand weakness, it would be reasonable to discuss with your doctor whether imaging might help assess if there's any progression happening that isn't obvious from physical exam alone. Don't hesitate to reach out between annual visits if you notice changes like decreased hand strength.

February 20

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