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A myRAteam Member asked a question 💭
Utah

I will be starting Renflexis infusions soon.

June 20, 2023 (edited)
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Answer Summary

Members rallied around someone preparing to start Renflexis infusions, with most sharing they had not personally used the medication but... Read more

Members rallied around someone preparing to start Renflexis infusions, with most sharing they had not personally used the medication but offered warm encouragement and requested updates on how it goes. Several members provided helpful context, explaining that Renflexis is a biosimilar to Remicade that works similarly but costs less, though some shared mixed experiences with biosimilars including stomach issues and varying effectiveness, while others noted that in some countries biosimilars are the only option covered by insurance. A recurring theme was concern about increased infection risk with immune-suppressing medications, with members sharing stories of frequent infections, UTIs, pneumonia, and fungal issues while on biologics, leading to cautious optimism tempered by the reality that managing RA often means accepting difficult trade-offs between pain relief and vulnerability to illness.

A myRAteam Member

Hi Carol,

I have not heard of this medication either. I hope it works out for you.

Here's what I have found.

The FDA approved RENFLEXIS as a biosimilar to Remicade. This means that RENFLEXIS acts in a similar way to Remicade, and there are no clinically meaningful differences in effectiveness and safety. Your treatment routine stays the same. RENFLEXIS works like Remicade.

June 20, 2023
A myRAteam Member

Reflexeis is cheaper version of remicade. It's a Biosimlar some people can use it many can't when I used a biosimlar of remicade it attack my stomach 🙃 and did not work at all. When you use this medication just be aware of you body reaction and how you feel. Hope it works for you and don't worry. Wishing you the best.

June 20, 2023
A myRAteam Member

My experience with Remicade was very unusual, but not unheard of. The first time I was getting my dose the clerk noticed I was quite flushed and asked how I was and I told her I wasn't at all right. Turned out I had developed 300/200 blood pressure. They rushed me down to the ER, the infusion room was in the hospital. They gave me meds to bring down my blood pressure. I had some awful reactions and blew out 50 capillaries in my brain. I forgot how to read and it took me six months to figure it out and start reading again. Then about five years later, I developed a problem with my immunoglobulin and when they tested me I had none in my body. I had several boughts of UTIs and several cases of pneumonia and my doctor looked at the IGs and sent me to a allergist as they are also the doctors who deal with IG problems. I have been on IG replacement therapy ever since. About three years ago I got a call from the allergist and they said they are getting more and more people who react poorly to Remicade and wanted to know if I had taken it.
So that's one more unfortunate story in my life, remember it is very unusual.

June 20, 2023
A myRAteam Member

Hey Carol2015, I looked it up. It is similar to Remicade.
Hope this helps. Marcia

June 20, 2023
A myRAteam Member

Sorry Carol, I don't know either. I hope it gets you relief with ZERO side effects!

June 20, 2023

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