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I was recently diagnosed with RA. It is thought that I've had it for many years but was misdiagnosed. The Rheumatoid (factor?) Does not show up in my bloodwork at all. How can they tell if I have a flare-up? My last Rheumatologist told me I shouldnt be in pain because the bloodtests didnt show a flare. I wasnt too happy with that as she waited over a week to draw the blood, and she believed a blood test over me. I am 55 years old and wasnt asking for more medications and am not even on… read more

November 11, 2018 (edited)
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Answer Summary

Members rallied around someone confused about seronegative RA, where the rheumatoid factor doesn't appear in bloodwork, reassuring them that... Read more

Members rallied around someone confused about seronegative RA, where the rheumatoid factor doesn't appear in bloodwork, reassuring them that this condition is real, painful, and absolutely deserves treatment regardless of lab results. Many members shared their own experiences with seronegative RA, explaining that doctors can still monitor flares through other inflammatory markers like sed rate and C-reactive protein, physical symptoms like joint swelling and warmth, and imaging such as X-rays that reveal joint damage over time. A recurring theme was the critical importance of finding a rheumatologist who listens to the patient's lived experience of pain rather than dismissing it based solely on bloodwork, with members strongly encouraging the original poster to seek a new doctor who treats symptoms with compassion and trust.

A myRAteam Member

Bonnie Moore - Not everyone with RA, has the active Rh factor (rf). Mine was extremely high when first diagnosed (18 years agi) , but after several years of treatment, it was down to the normal range - but I still have and am treated for RA and OA. I have not had that done for a few year, however I have blood work done every 10 weeks to check for other indicators. The Meth has really been able to keep it under control - thank goodness. I hope you can get in with a good Rheumatologist who can help you with your questions.

November 12, 2018
A myRAteam Member

My RH factor doesn't show up in my blood work either. My doctor goes by how I feel and my swelling numbers, but mostly how I feel. Since I was diagnosed 2 years ago, this is the first time I have had a flare that I could really recognize. My meds had been working, but now, not so much and are changing the protocol. I say find a doctor you trust and listens to you. Also talk to your primary care doctor.

I am finding that I have to explain this disease to just about everyone, and all while I am still learning about it. I have a feeling this site is going to be a great resource.

November 12, 2018
A myRAteam Member

My blood work is always normal - go figure. I've had RA for about 6 years now and while my doctor does routine labs, they are always normal - even during a flare. She simply goes by how I'm feeling and how the pain limits some of the things I want to do.

November 12, 2018
A myRAteam Member

Lol. If I did that they'd say "What the heck is an autoimmune disease"? We cant win can we??

November 12, 2018
A myRAteam Member

I have every symptom EXCEPT the rheumatoid factor. My rheumy has changed my diagnosis from RA to Psoriatic Arthritis. There are few differences and treatment is the same. My rheumy treats me according to how I feel, not what the labs indicate.

November 11, 2018

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