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Hi πŸ‘‹ I think i have RA. However, due to the difficulty and delay seeing Drs and Specialists, by the time I saw them I APPEARED symptom free. My bloodwork doesn't show it but I have a strong family line of diagnosed seronegative RA. My aunt is supportive and agrees with me to continue seeking a correct diagnosis. I am feeling gaslit by the Dr's when they tell me that with RA you are never without significant swelling. Am I wrong?

July 1
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A myRAteam Member

I have had RA for more than 25 years (diagnosed). There have been months and years when the symptoms go away, sometimes after taking medication for a while. Part of the disease is flares, and it's not consistent in terms of inflammation. Also, when I first got it long ago it took a while to get a diagnosis. After going to 2-3 doctors, one of them finally diagnosed me and put me on meds.

July 3
A myRAteam Member

Yes, you can have RA even though the RA factor isn't showing up, and even though you haven't had a flare up in a while. I have been diagnosed for RA since I was 25, I'm 61 now. I have went months without a flare up( been a long time) and then I have went months with flare ups. You definitely need a second opinion. That being said, and you are confirmed with RA, research all medications they may prescribe to you. Just because it's a doctor doesn't mean you have to listen to everything they tell you to do, or take. Trust me, I've had recommendations that made me far worse than before I started taking it. I seriously hope you stay in remission and never have to see a rheumatologist in your life! Sending Blessings!!

July 1
myRAteam

First of all, hi! πŸ‘‹ Your frustration is completely valid, and no, you are not wrong.

Yes, a person with RA absolutely can appear symptom-free for periods of time. RA symptoms naturally cycle between flare-ups (when symptoms worsen) and remission (when symptoms ease or disappear). This is actually a well-recognized pattern Show Full Answer

First of all, hi! πŸ‘‹ Your frustration is completely valid, and no, you are not wrong.

Yes, a person with RA absolutely can appear symptom-free for periods of time. RA symptoms naturally cycle between flare-ups (when symptoms worsen) and remission (when symptoms ease or disappear). This is actually a well-recognized pattern of the disease. The doctor's claim that RA always presents with significant swelling is misleading. Here's why your situation makes complete sense:

- RA symptoms like joint pain, stiffness, and swelling can come and go
- Flares can last days or months, followed by periods where symptoms reduce significantly
- Seronegative RA means bloodwork may not show typical RA markers, making diagnosis harder
- Having a strong family history of seronegative RA is a meaningful risk factor worth investigating A myRAteam member shared a very similar experience, saying their tests were repeatedly negative due to being seronegative, and they got worse before receiving a proper diagnosis based on their clinical presentation alone.

Keeping a detailed symptom diary, including dates, locations, and severity of symptoms, is strongly recommended. This gives doctors a clearer picture beyond what one appointment can show. Continuing to push for a rheumatologist who takes your full history and family background seriously is absolutely the right move. You deserve to be heard. πŸ’™

July 1

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