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I was told not to get the shingles vaccine because it's a live vaccine and it could activate shingles. I was also told today by another doctor in the pharmacist that they've made a newer shingles vaccine for people with autoimmune disease. Has anybody gotten this? It's too late for me now but maybe I'll have that in the future.:(

May 31, 2018
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Answer Summary

Members shared mixed experiences and guidance about getting the shingles vaccine while managing rheumatoid arthritis, with most clarifying... Read more

Members shared mixed experiences and guidance about getting the shingles vaccine while managing rheumatoid arthritis, with most clarifying that the newer Shingrix vaccine is not a live virus and is considered safer for people on immunosuppressive medications like biologics and methotrexate, though some doctors remain cautious due to limited long-term studies. Several members described their own painful experiences with shingles, including recurrent outbreaks, vision loss, and severe discomfort lasting weeks, which reinforced the importance of discussing vaccination timing and eligibility with both a rheumatologist and primary care doctor. A recurring theme was the need to wait a certain period after having shingles before getting vaccinated, with most members emphasizing the value of preventing future outbreaks given how debilitating the condition can be, especially for those who are immunocompromised.

A myRAteam Member

I believe you have to wait a year . I want to get one, actually you get two- six months apart. Doctor said to get it at at pharmacy.

August 30, 2018
A myRAteam Member

I received a Shingrix vaccine today. Apparently the new vaccine is better than the old one.
2 injections are required, I will receive my second injection in 2 months.
I currently only take Methotrexate.

August 22, 2018
A myRAteam Member

thanks @A myRAteam Member I'll have to ask my rheumy about it. I hadn't heard of it.

June 6, 2018
A myRAteam Member

The new shingles vaccine, Shingrix, is not a live vaccine. My Rheumatologist said it’s the best of the 2 vaccines for shingles, but not enough studies to know if it could have any impact on an autoimmune disease state. Knowing this, she told me it was up to me if I wanted to get it or not.

June 4, 2018
A myRAteam Member

Shingles vaccine is a no no for most of us. It's a live virus and if you're taking methotrexate or any biologics, you cannot have the vaccine.

June 4, 2018

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