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I am concerned that I will get shingles....well down right scared I will get it. My dad has had them three times. The last time I asked about the shot, I was told I could not get it. Why can I not get it?

June 8, 2016
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Answer Summary

Members shared conflicting experiences about whether people with rheumatoid arthritis on immune-suppressing medications can safely receive the... Read more

Members shared conflicting experiences about whether people with rheumatoid arthritis on immune-suppressing medications can safely receive the shingles vaccine, with some reporting their doctors approved it while on methotrexate or other DMARDs, and others being told they must avoid it entirely due to the live virus risk, especially when taking biologics like Humira or Remicade. Several members described the excruciating pain of shingles itself, with one taking daily antivirals to prevent recurrence and another friend developing shingles shortly after starting Humira, reinforcing the fear and urgency many feel about prevention. A recurring theme was frustration over insurance coverage limitations, age restrictions (often requiring patients to be 60 or older), high out-of-pocket costs ranging from $250 to $400, and the difficult trade-off of potentially stopping biologics for months just to safely receive the vaccine.

A myRAteam Member

My doctor told me it depended on the amount of RA meds I was taking. He said what I take is low enough to get the shot.

August 19, 2016
A myRAteam Member

I am on RA meds [not biologics] and the docs said it was ok to get the Shingles shot so I did. There's still a chance we can get the shingles but it will be a milder case.

June 12, 2016
A myRAteam Member

I saw Rheumy on Weds. He told me to get a pneumonia and shingle shot before I start Humira in 2 weeks. I got shingles Christmas week last year. I don't want that pain again. I am going to get the shot.

October 28, 2016
A myRAteam Member

If you get shingles it will not kill you. It is uncomfortable but there is medicine you can take that helps. I had it beneath my left breast. Lyrica helps with it also. There are no scars but can be some residual nerve damage. Dont take any shot without talking to your doctor just to be safe. Dont worry about this. You are a tough lady. Worry and stress are not good for you. One in three get shingles. If you had chicken pox as a child the virus is already inside you. I promise that if you did get this you will survive it and be ok. Ill be praying for you! This is one of those things you may not be able to control. Talk with your doctor. Then let it go. God is in control. He will not give you more than you can bear!♡♡♡♡

October 23, 2016
A myRAteam Member

I am on Methotrexate, Sulphasalazine & Hydrochloroquin (all spelled wrong) and my Dr said it is fine. I already had Shingles once but it was not a bad case. I keep planning to get the shot but have not yet...thanks for the reminder!!!

July 16, 2016

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