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A myRAteam Member asked a question 💭
Mississauga, ON

The subject came up in my feed of another RA group. I ask because about 10 years ago I had shingles twice, and it was not an experience that I would want to go through again.
Thanks in advance.

January 12, 2018
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Answer Summary

Members discussed whether methotrexate and other RA medications increase the risk of shingles, with many confirming that a compromised immune... Read more

Members discussed whether methotrexate and other RA medications increase the risk of shingles, with many confirming that a compromised immune system from RA makes shingles twice as likely, prompting several to get vaccinated despite concerns. The conversation centered on Shingrix, a newer non-live virus vaccine requiring two doses that costs around $400 and causes temporary soreness and flu-like symptoms but is considered far preferable to experiencing shingles again. A recurring theme was the confusion around whether immunosuppressed patients can safely receive the vaccine, with members sharing that their rheumatologists had mixed guidance and recommended bringing research or waiting for more studies before deciding.

A myRAteam Member

What a timely discussion...I had mentioned in an earlier post that I had been reading about a shingles vaccination coming out that did not use live virus which would be great for people with autoimmune diseases!

On my drive into work this morning there was a segment on CBC radio on Shingles, and this new shingle vaccination with the lab manufactured virus is apparently more effective than the previous one, and instead of providing protection in 70% of people it provides protection for all, it also lasts longer than the previous shot did. The one drawback that they discussed is it really hurts at the site of the injection - given we live with pain every day, I m guessing it will be worth the short-term pain.

It has been released this month and involves getting two shots instead of one, costs about $400 for the two shots - of course it isn't covered by OHIP, but if I can avoid getting shingles again it will be worth every penny.

Will ask my rheumy about it and let you know the outcome. Thank you so much for everyone who gave feedback on this question/post. Much appreciated.

January 16, 2018
A myRAteam Member

American College of Rheumatology vaccine guidelines. Good read ...

https://www.google.com/url?sa=t&source=web&...(Phone number can only be seen by the question and answer creators)%2F&usg=AOvVaw2kzJBzza8jzrihNFlSMZDc

January 14, 2018
A myRAteam Member

I have since done some reading about clinical trials being done using non-living virus. Apparently with RA there is double the chance of getting shingles.
Also, if the dosage of MTX is low it may be an option to get the vaccine with the living virus.
Will check it out with my rheumy when I see him next to explore the possibility.
Thanks so much for the helpful responses.

January 13, 2018
A myRAteam Member

I recently asked my Rheumatologist about Shingrix. She agrees it’s the better of the 2 vaccines, but unsure how it will effect the RA disease state. Not enough studies yet. Tough call...

June 14, 2018
A myRAteam Member

This is so funny! I just heard about the vaccine as well, and put a call into my Rheumatologist today to confirm that I can take it.
It’s called Shingrex. Google it!

January 16, 2018

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