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May 25, 2015
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Answer Summary

Members shared mixed experiences with Arava for rheumatoid arthritis, with some reporting no side effects after years of use while others... Read more

Members shared mixed experiences with Arava for rheumatoid arthritis, with some reporting no side effects after years of use while others experienced challenges including loose bowel movements, hair loss and thinning, breathing difficulties, persistent cough, and itching. Several members found relief by combining Arava with biologics like Enbrel, Orencia, or Rituxan when Arava alone wasn't enough, with one member noting their doctor suggested adding a biologic when labs remained problematic and swelling persisted. A recurring theme was that each person responds differently to the medication, with some tolerating it well and others needing to switch treatments, though many emphasized the importance of open communication with rheumatologists about symptoms and treatment effectiveness.

A myRAteam Member

It. Gave me bad diarrhea I lost 15 pounds in one month so I had to go off of it.

June 14, 2015
A myRAteam Member

I've been on Arava for 7 months now, and so far it works, at least my rhuemy thinks so. I am still exhausted all the time and in pain. Methotrexate made me sick to my stomach. I haven't had any side affects, but I am experiencing hair loss, I am wondering if it is the Arava doing that.

May 31, 2015
A myRAteam Member

I've been on Arava for two years now. I also take a biologic. The only side effect I have noticed is loose bowel movements. I keep plenty of immodium around and I'm fine. Sorry if TMI, but thought you might want to know.

May 31, 2015
A myRAteam Member

Well now that I have read a few other reviews my hair broke off thinned out thought but b12 def have been taking shots of that for a year been on Arava and noticed my hair doing it again. I go back to ra dr next week. So far nothing has worked either made nd sick or just to many side effects for me My hands hurt the worse if I had to pick

April 25, 2018
A myRAteam Member

When Methotrexate was not cutting by itself. My labs were still a mess and my hands & feet swollen. He discussed it with me first so we decided together.. I started with Enbrel. Back then it was mostly the only one for home use. It worked well for a while but had to changed before finally getting Rituxin infusions. That helped and wish I could still get them. Medicare doesn't cover enough of the cost for infusions. Orencia is what I use now, the home injections. If you feel you are not improving ask your doc about adding a biologic. Good luck ;))

June 9, 2015

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Melbourne, AU

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