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August 17, 2016
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Answer Summary

Members shared widely varied experiences with Arava (Leflunomide) for rheumatoid arthritis, with some calling it a miracle drug that worked... Read more

Members shared widely varied experiences with Arava (Leflunomide) for rheumatoid arthritis, with some calling it a miracle drug that worked beautifully for years while others had to stop due to severe side effects like diarrhea, liver issues, nausea, or blurry vision. Several members emphasized the importance of regular blood work to monitor for liver problems, and many noted that finding the right medication often involves trial and error since everyone's body responds differently. A recurring theme was balancing the fear of potential side effects against the consequences of leaving rheumatoid arthritis untreated, with members encouraging each other to stay vigilant, communicate openly with their doctors, and give their bodies time to adjust before deciding whether a medication is working.

A myRAteam Member

Just remember that any med is going to list side effects. The drug companies have to cover their butts. Even aspirin has side effects for some people. I try not to read all the possible side effects on new meds for fear that I will mentally cause myself to develop them. I just try to keep very close tabs on any changes in my body and then look to see if they are possibly related to the new med.

August 25, 2016
A myRAteam Member

Do a little deeper research. It takes 2 years for Leflunomide to be out of your system! I was recently changed to it. I read this and I am not that happy with such a potent drug! I noticed so much about not getting pregnant or even consider it (not that I am), but it even warns men to wear condoms so no accident pregnancy. Then I kept reading...... It's very scary.

July 21, 2017
A myRAteam Member

I was on it for about 2 months, I took myself off it because I was having diarrhea so bad I have been off it for around two weeks now and haven't had that problem again when I see my doctor I will let her know

November 25, 2022
A myRAteam Member

I had no noticeable side affects while on this

August 31, 2016
A myRAteam Member

been on it 4 years great 4 me

August 28, 2016

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