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A myRAteam Member asked a question 💭
Marcus, IA
October 8
 · 
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A myRAteam Member

@A myRAteam Member Im hoping to go back into employment if it wasn't for this I would of still be working. Financial support is zero . funny thing is you feel invisible. I've applied for Jobs and have put in supporting letters with my application that I have this I'd rather be honest from the go than being dishonest and try to hide it Which isn't always possible because when it's at it's worst it a real struggle. But it's just sorry you're application was unsuccessful. I've got help on the 21st to help me with this situation I'm just going to suck it up and carry on. I've worked in customer service many years ago and trying to stay awake through the bordem was hard enough with out trying to do it with this I'll have to paint eyes on my eye lids

October 10
A myRAteam Member

Steven, you are right about everything you said! I'm on MTX (methotrexate) 20 mg and hydroxychloroquine 400 mg. I feel the exact same way that you do. It isn't working like I expected. I still feel bad more than I feel good. I had problems with fatigue before, but its absolutely ridiculous how the littlest things can take you out. You are not alone in the way you are feeling. I work full time and its a struggle. I don't have a bunch of free time to do all the things that I need to do to deal with this monster. I get 1 day a week to rest, as work and dr appointments fill the rest of my time, and thats just not enough. So many people here have told me that it takes time to find the right combination of meds, but feeling like a person again IS possible. Hang in there. We are in this together!

October 10
A myRAteam Member

Hang in there, that feeling normal and energetic and then the switch sure is one of the hardest things to understand,

October 8
A myRAteam Member

I'm on methotrexate and I'm still unsure about them. I've actually developed more flares that I never had before and the tightness I get is unreal. I've had the quantity adjustment from 6 to 8 tablets. But I just feel tired all of the time and it's just sudden I can feel full of energy wide awake to fully exhausted at the flick of a switch it's really weird. I'm back at hospital on the 13th of October for another full examination and I presume to talk about how well the medication which I feel isn't doing as well as expected. They need to figure something out as I've got to try and find work in a different career and I don't think it'll last long if I can't always use my hands until I get full function back . Pardon the language but RA is utter shite it's nothing but a burden I feel like a medical experiment with hope they get something right so I can get on with a normal day and do normal tasks. England isn't the best place to be ill at the moment.

October 8
myRAteam

When biologics haven't worked out, there are still options worth exploring with a rheumatologist. Treatment for RA has evolved quite a bit, and no single path works for everyone.

Here are some directions that may be considered:

- Switching biologics — There are several types of biologics that target different parts of the Show Full Answer

When biologics haven't worked out, there are still options worth exploring with a rheumatologist. Treatment for RA has evolved quite a bit, and no single path works for everyone.

Here are some directions that may be considered:

- Switching biologics — There are several types of biologics that target different parts of the immune system, so trying a different one is often a next step
- JAK inhibitors — These are a newer class of oral medications (yes, actual pills!) that work differently from biologics and may be effective when biologics haven't helped
- Combination therapy — Sometimes combining a conventional DMARD like methotrexate with another treatment can improve results
- Conventional DMARDs — Medications like methotrexate, hydroxychloroquine, leflunomide, or sulfasalazine may be revisited or adjusted

It's really important to keep an open and ongoing conversation with a rheumatologist, as treatment plans often need to be adjusted over time. What works well for one person may not work for another, so persistence and patience are key.

October 8

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