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June 19
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Answer Summary

Members came together around the shared frustration of random dizziness, with many connecting it to their autoimmune conditions like RA,... Read more

Members came together around the shared frustration of random dizziness, with many connecting it to their autoimmune conditions like RA, Meniere's disease, and POTS, as well as medications, dehydration, and inner ear imbalances. Several members shared helpful strategies including pacing activity with timed rest breaks, staying hydrated, doing eye-movement exercises through physical therapy, and using the Epley maneuver for BPPV vertigo relief. A recurring theme was the comfort of knowing these symptoms are not imagined, with many expressing deep gratitude for a community that truly understands what living with these conditions feels like.

A myRAteam Member

@A myRAteam Member is there any reason that your aide is in the Dr Exam room with you? If she makes you uncomfortable ask her to wait in the waiting room. Your physical health should not be hidden from your Dr, but your aide doesn't need to be in the Exam room with you unless there's a legitimate reason she is. I mean, if it's for your safety, that's different.

June 23
A myRAteam Member

There are so many medical issues that can cause dizziness, but the primary ones are low blood pressure and dehydration. I make it a point to carry a bottle of water with me everywhere I go and I drink a religiously.

June 23
A myRAteam Member

Yes, dizziness is a constant companion of mine. Several weeks ago I had a terrible bout of it. Weird, as it was the worst when I laid down in bed and turned over on my left side. My bed took off and flew around my bedroom…at least that’s what it felt like. I have issues with standing, turning corners and looking from side to side too. I spoke to my GP about it and she ordered physical therapy for me. My physical therapist, who is specifically trained in vertigo, has given me exercises for the eyes. He says it’s the eyes who are actually the cause of vertigo. Your eyes move contrary to your brains normal expectation of eye movement that that sends contrary orders to the brain for balance. Your brain becomes confused with the contrary orders. Makes sense to me. So, most of my “exercises” right now are controlling eye movements up/down and side to side without turning my head. I just started physical therapy, so I assume more training of my eyes and their movements will follow. Maybe physical therapy is something you might want to request your doctors to order for you to hopefully help.

June 22
A myRAteam Member

It is heartbreaking but God is good! God and this platform get me through some terrible days.

October 7
A myRAteam Member

I also get vertigo. They tested me at a balance and vestibular center and said it was BPPV. I get it when turning over, get up too fast, quickly turning, bending down. He was able to fix it with an Epley manuever, but it did come back 2 months later and I had to have all the Manuevers done again. Been vertigo free now for 2 1/2 weeks and counting. It is a horrible feeling. The Epley manuever is no fun, but it lets you get on with your life. Hope you find some relief. Mine was diagnosed as BPPV so yours may be different. Seems to go along with autoimmune problems and osteopenia they say. Keep hydrated! Get well

June 23

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