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A myRAteam Member asked a question 💭
Toronto, ON

Has anyone heard of DYSAUTONOMIA?
Apparently people who have RA can develop this.

July 20, 2021
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Answer Summary

Members shared their experiences with dysautonomia in relation to RA, with many recognizing symptoms like vertigo, heart palpitations, dry... Read more

Members shared their experiences with dysautonomia in relation to RA, with many recognizing symptoms like vertigo, heart palpitations, dry eyes, nerve pain, and extreme fatigue. Several members recommended seeing a neurologist, and one shared helpful advice from their heart doctor comparing the condition to rapidly pressing and releasing a gas pedal, with tips like avoiding caffeine, changing your diet, and getting plenty of rest. A recurring theme was the importance of managing daily symptoms with tools like eye drops, metoprolol for palpitations, and slowing down movements to reduce dizziness.

A myRAteam Member

Yes, I'm dealing with that now. I'm seeing a heart dr. Due to rapid heart beats. And was diagnosed with dysautonomia. Changing your diet really helps, just follow the eating regimen as stated with this problem. And get plenty rest when you can. I had several test done. Dr. Explained it like pressing and stopping on the gas. Your body excelerates and go into a sudden stopping on brakes. That was a great analysis. Because one minute your going the next min. you barely have any energy to do anything. Avoid caffeine also.

July 27, 2021
A myRAteam Member

I have fibromyalgia and dysautonomia is a form of it. It’s a malfunction of the autonomic nervous system. I don’t have all those symptoms of Dysautonomia but it’s in the same family. I was told that not everyone that has RA gets that. There are just a lot of people who have RA who get fibromyalgia.

But seeing a neurologist like I do is the Doctors who handle that. But you need to see a neurologist. I have bad sweating, severe nerve pain in my legs on top of thighs and along down the sides of my legs to the point on some days I have to sit down and not walk any further. I have dry eyes all the time so eye drops called Refresh Relieva or sustain a few times a day.

July 21, 2021 (edited)
A myRAteam Member

"Dysautonomia: Symptoms, Causes, Types, & How to Live With" https://my.clevelandclinic.org/health/diseases/...

July 23, 2021
A myRAteam Member

Have not heard of this. However, I was told that dizziness can be caused by getting up to quickly, bending over then getting up to quick, and going from laying down to standing to quickly. Told to slow down when doing these things. When getting up from a laying position I sit up first for about 2-3 minutes. When bending over, I stand up very slowly instead of doing it rapidly, seems to work for me.

July 21, 2021
A myRAteam Member

I do have some symptoms of dysautonomia: I have occasional vertigo, I developed palpitations, sometimes premature ventricular contractions. I have very dry eyes, I developed floaters. My doctors told it’s because of my RA.
If I don’t take my meds as scheduled, I can have chest pain and short of breath but relieved when I am walking leisurely.
My palpitations was relieved by metoprolol. I use eye drops 3-5 times a day to lubricate my eyes.
My vertigo and dizziness. I don’t know how to treat it. I just work to keep my mind busy and forget about RA.

July 20, 2021

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