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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 5
 · 
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A myRAteam Member

Hi Lee,,
I am glad you did not have to experience that reaction.
When I was taking Planquenil my Rheumatologist made sure my eyes were checked every 6 months and included field test, which checks your
Peripheral vision. This is more common, that your eyesight can be effected in this way of losing partial sight. Again, a small percentage, but you can't be to careful when it comes to your eyes.

April 20
A myRAteam Member

Hi Lee,
Steven's Johnson can be a reaction to any medication and needs to be diagnosed and treated immediately.
I am very sorry you had to experience this and hope all is well now.

April 20
A myRAteam Member

Thanks for the input. Yes my rheumatalogist suggested to take an eye exam before taking planquenil so that I have a baseline of my vision. Retinal damage is from plaquenil use is one of the side effects long term use.

April 21
A myRAteam Member

Thanks for your reply. The reason why I'm asking about Stevens Johnsons syndrome is because I've heard people on planquenil acquired this disease. Knock on wood I hope and pray NOT to get this because I just started taking planquenil this is my 2nd wk now. I'm just curious I know it's very rare cases.

April 20

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