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A myRAteam Member asked a question 💭
Utah

Today my rheumatologist took me off of Teyenne and is going to put in a request with my insurance for Cimzia injections.

February 5
 · 
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Answer Summary

Members shared mixed experiences with Cimzia injections for rheumatoid arthritis, with some finding immediate relief while others experienced... Read more

Members shared mixed experiences with Cimzia injections for rheumatoid arthritis, with some finding immediate relief while others experienced severe itching, eczema, and had to discontinue treatment, highlighting the trial-and-error nature of finding effective biologics. A dominant theme throughout the conversation was frustration with insurance companies dictating medication choices, requiring prior authorizations, imposing high out-of-pocket costs until deductibles are met, and forcing members to choose between affording food and affording their prescriptions. Several members offered practical strategies for navigating the system, including asking pharmacists to run discount cards like AARP and manufacturer coupons, keeping detailed medication lists with side effects and dates to share with doctors, shopping around for vitamins online, and advocating firmly for themselves when insurance denies coverage or doctors suggest previously failed treatments.

A myRAteam Member

I have been on cimzia injection for over a year. I have tried many different biologic treatments but unfortunately without success. Cimzia has worked from day 1. I realise this will not be possible for everyone but for me it has. Try it.

February 5
A myRAteam Member

I have a list of meds that I refuse to take again because of severe side
effects. I keep my list with the name of drug, side effects, dates that I took it and the doctor who ordered it. I use to have to go in the hospital because of blood clots, BP problems and inflammatory pericarditis. The doctors there only scan the patient’s chart and do not know you. I have a notebook that I keep my medical history. The doctors want to make us better so they will try to change your medication and sometimes they just go order something else and you don’t know with all the different names of the same meds. I ask the nurse about my meds when they come in. I compare my list to theirs. It is in their best interest if the doctor tells me my plan of care. I worked as a RN in a hospital for over 30 years.
Speak up. Ask questions. Some doctors in the office will make changes in your medications. You may not know until you go to the pharmacy. Don’t pay the first high price that the pharmacy tells you. They have coupons from drug companies in their computer. If you happen to see an AARP drug card, use it. You do not have to be an AARP member to use it. My pharmacy knows me and they run all three of my cards on file. I always ask if they did just in case that I have to train someone new. lol
I have had meds that come up with what I feel is too expensive and the AARP card pays it all.
Drug prices are a rip off. After I found out their system I try to get my meds as cheap as I can because I have to take medications and vitamins. I order my vitamins online. Temu sells the same brands locally and a lot cheaper.
It pays to shop around especially if you are on a fixed income and like to eat
Happy Valentine’s Day!
Enjoy the weekend

February 13
A myRAteam Member

I'm glad Rinvoq is working for you! It didn't work for me. We are all so different. ❣️

February 10
A myRAteam Member

I am just learning to make a list of my medications, doses, provider's names, what the medicine is for, etc...I think that's a Great idea..Thank you everyone who shared this!

February 18
A myRAteam Member

Here in Australia my rheumatologist never mentioned other treatments but metratexate. Even googling here only shows metratexate.Sounds like we're a bit behind...

February 10

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