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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Vancouver, Portland, North Coast, WA
January 30
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A myRAteam Member

luister naar je lichaam maar wat er ook al gezegt is soms ook doorpushen geeft afleiding van de pijn en de eelende die je voelt sterkte ik neem de dag zoals die komt eerste 2 uren kan ik bijna nix daarom sta ik om 5.30 op ik dwing mezelf tot veel van sporten tot huishouden paar dagen schilderen in de week halve dagen

February 4
A myRAteam Member

Kim, it used to really effect me when I had to cancel or say no to an invite. Some people quit asking, but my best friends have not given up on me. When I can go I go, if not they understand. It took awhile for family to understand, but they all understand now. Once you understand yourself that if you can go and want to go you will. When you don't you have to not beat yourself up about it. The stress of it can through you into a flare. I have learned sometimes I push myself harder sometimes so I can be more active. But other times my body just flat says no go!

January 31
myRAteam

How do you explain missing plans due to RA flare-ups?

Many myRAteam members share your experience of having to cancel plans during flare-ups. The frustration is real, especially when others don't fully understand what you're going through.

What members hear from others:

Some members report that family and friends can be Show Full Answer

How do you explain missing plans due to RA flare-ups?

Many myRAteam members share your experience of having to cancel plans during flare-ups. The frustration is real, especially when others don't fully understand what you're going through.

What members hear from others:

Some members report that family and friends can be supportive, while others struggle with understanding. One member shared, "My significant other is tired of me being ill — limited understanding." Another said, "Sometimes we feel alone because we feel nobody understands what we're going through."

Tips for explaining to others:

- Provide concise examples of how RA affects you, avoiding lengthy explanations
- Let people know when you're having a flare-up or experiencing pain and fatigue
- Be open about what kind of help you might need
- Keep loved ones informed about your treatments and how they affect you

For work situations:

If you need to miss work appointments, discuss your condition with your HR manager. You may need accommodations, and businesses with more than 15 employees must provide reasonable accommodations under the ADA.

The key is clear communication about your needs while setting boundaries that protect your well-being during flares.

January 30

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