Answer Summary
Members connected over the question of how long RA may go undetected, sharing years of unexplained symptoms like bowel issues, Bell's palsy,... Read more
I've just been reading about how to understand my results. I'm terrible Jessica I've just been going in giving blood getting my paperwork and putting in my little folder it's the first time it's saw the day of light since I got it but I'm going to do some reading and keeping a log of the abbreviations . I'm going to enquire about why there isn't an HCRP on the paper work I'd be lost without this place. I've been ignorant to my results it's been about symptoms and looking for cures. thanks for the advice Jessica it'll make everything a bit easier to understand ⭐
I would suggest learning to read your lab work. It helped me to make more sense of things. Your RF is high and HCRP is for your heart, but CRP is for inflammation. I know it's a lot, but being a blind follower contributes to the confusion. They are checking your liver because Methotrexate can increase your liver levels, which isn't good. They will be checking your levels of everything pretty regularly, or they should be anyway. You don't ever need another anti ccp test. All it does is confirm RA. Just because your levels drop, doesn't mean you no longer have RA, or that your inflammation is better. I did a lot of studying about this during the 2 years my WBC count was high but didn't have a diagnosis. I just couldn't understand why they kept telling me nothing was wrong. They always want a blood test to show it, and mine did, but they still said nothing was wrong. They were just about to the point of ignoring it when I finally got a positive test. Now my WBC count is what yours is on the paper you posted. You are only a little high, but it definitely could be from the RA. Monocyte count is only a tiny bit high, so not really alarming. Your total count is also high, but not alarmingly high. We you sick recently?
STEVEN! I want to tell you, I went through the EXACT same thing! WBC count was at 19,000 when I finally got diagnosed. Do you show high CRP, ESR or RF? I don't. But what I've found is that your inflammation can show through your white blood cell count. The way you know if your in a flare is neutrophil to lymphocyte ratio. If it is above 2.3, you are in a flare. My WBC count has been high for YEARS. I've had all the same issues that you have had except the face paralysis. Bells palsy effects men more than women, so there's that. BUT, you are the first person so far that has had the same problems as me, assuming you don't show inflammation in other ways. I didn't get diagnosed until I finally had a positive anti-ccp test. They tested me from head to toe when my WBC count went up so high. But it still took 2 years after that for me to get diagnosed, all the while having an alarmingly high WBC count. I've been suffering for a long time and the methotrexate and hydroxychloroquine I'm on isn't working. I have realized that Dr's don't want the hard cases. RA runs in my family and all the Dr's knew that, but it still took years for them to do something. I was blown off several times. Lots of tests with no answers. It wasn't until my WBC count got so high that they got worried, and even then, couldn't find anything wrong. Its been very frustrating for me. I've been dealing with pain for many years plus all the other stuff. So I hear you loud and clear!
I'm taking one 5mg tablet on a Friday and take methotrexate on the monday.its easier doing the injections. It's hard work trying to get the pills out of the blister packs as they were tiny. same with the folic acid it's just a small pill. when you're fingers aren't moving to good it's a little bit of a nightmare if I'm honest. Yeah I've not had much stomach troubles at the moment more constipation thank god because trying to wipe is very difficult and painful as I'm right hand dominant. to be honest this whole year has been a complete shambles for my hand . Operation Plated and pinned from 31st of Jan 3 months physiotherapy went back to work when it wasn't full repaired got flu which wiped my body out then diagnosed with seropositive rheumatoid arthritis. I can't wait to see the end of this year and to top it off the country has been told to start preparing for war . I'm starting to wonder if that's why they are delivering 6 months worth of methotrexate and medical supplies on the 4th and 25th of November. But thanks for the kind comments and I'm hoping you,s get some relief for your illnesses. It's hard work on the body and mind
Steve, I'm sorry about the IBS bowel issues...I know how tough that issue can be and it can cause stingy burning almost nueropathy type feelings for a couple of days after a bout with the IBS as well in spite of being on Methotrexate. I hope and pray that the higher dosage of Methotrexate as well as changing to the injection form will be your answer. How much folic acid do you take with your methotrexate?