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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Walla Walla, WA

Hi, I started having issues over the summer and had to live like a vampire. The instant the sun hit my face I started itching and would get a rash on my face. Now that it’s winter that’s not an issue. However, when I cook over the stove I have to tap out and have someone else take over because the same dang thing happens. I got over heated and my face itches. I’m going to bring it back up to my rheumy when I see him again. Does anyone else deal with this?

January 15, 2025
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Answer Summary

Members widely related to the question about heat intolerance, sharing that extreme heat or even warm showers can trigger rashes, dizziness,... Read more

Members widely related to the question about heat intolerance, sharing that extreme heat or even warm showers can trigger rashes, dizziness, fainting, and flare-ups, while cold temperatures can also worsen symptoms. Several members identified medications like Plaquenil and Humira as contributing factors, along with underlying conditions such as Sjögren's disorder, and offered practical strategies including using fans near the stove, wearing sunscreen daily, staying indoors with air conditioning, and installing a shower chair for safety. A recurring theme was the challenge of finding a comfortable temperature range, with many describing spring and fall as their most tolerable seasons and emphasizing the importance of self-advocacy with rheumatologists and taking precautions like medical alert devices when heat or cold sensitivity becomes dangerous.

A myRAteam Member

I experience a burning sensation and rash when out in the sun for a bit. I understand that the Hydroxychloroquine that I take causes that.

January 15, 2025
myRAteam

Heat intolerance and skin reactions, like itching and rashes, can be linked to rheumatoid arthritis (RA) or its treatments. Some RA medications, such as NSAIDs or biologics, can increase sensitivity to heat or sunlight, causing rashes or discomfort. Overheating can also worsen inflammation or trigger skin issues. It's great Show Full Answer

Heat intolerance and skin reactions, like itching and rashes, can be linked to rheumatoid arthritis (RA) or its treatments. Some RA medications, such as NSAIDs or biologics, can increase sensitivity to heat or sunlight, causing rashes or discomfort. Overheating can also worsen inflammation or trigger skin issues. It's great you're planning to discuss this with your rheumatologist—they may adjust your treatment or recommend strategies to manage these symptoms.

January 15, 2025
A myRAteam Member

Hi it's me TeresaRobinson3
I to suffer with the heat ad I do in the cold. Spring and Fall are my best time's. The heat does put me in a inflammation really bad that I visit the ER. We are in first name base's, I have been their so many time's. I have a chair in the shower so I can have a cool or warm shower depending on the season we're in.
I think when your in a pustion that you may need a medical alert you rear as a watch or it hangs on your neck where you push a button and help comes to you. I have one and let me tell you it's a life saver, I have had to push the button twice and the paramedic's are their in 2 to 5 minutes. But if you are passing out in the shower you need one. They are water Prof you can wear it in the shower. Please get one, also make sure someone knows what health problem's you have, someone you trust family or friends.
I better get to bed, you'll have a warm night.
GOD BLESS YOU ALL

January 22, 2025
A myRAteam Member

I had the same thing happen it was all over my eyes also. I was diagnosed with sjogrens disorder. It comes with RA and lupus. Talk to your rheumatologist about your symptoms. I take azathoprine and vitamin E to keep it dormant. I was on plaquenil for it but was allergic. You’re not suppose to be in extreme heat or the sun at all on plaquenil. It causes skin cancer and can turn your skin a burnish gray

March 3, 2025
A myRAteam Member

I live in Texas we have extreme heat. I survive it. It’s difficult to get rheumatology to find the treatment that works to put RA patients into remission without some kind of side effects. Xeljanz I have to wear sunscreen or I get pre skin cancer or skin cancer. The goal is remission. And not to use Prednisone or Solu-Medrol dose packs so frequently it will destroy with consistent use.

January 21, 2025

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