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A myRAteam Member asked a question 💭
Las Vegas, NV

Does anyone suffer from painful neuropathy in your lower legs, feet and ankles?
Do you know what caused it? What type of treatment are you getting? How was is diagnosed?
Sorry for so many questions just trying to figure things out. Last visit to rheumatologist, he suggest it may be a possibility.
Thanks

December 27, 2022
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Answer Summary

Members shared their experiences with painful neuropathy in the lower legs, feet, and ankles, describing symptoms like burning sensations that... Read more

Members shared their experiences with painful neuropathy in the lower legs, feet, and ankles, describing symptoms like burning sensations that worsen at night and difficulty tolerating even the weight of bedsheets. Several members explained how they were diagnosed through nerve conduction tests and Doppler ultrasounds ordered by neurologists, with one member emphasizing the importance of persistence after her mother's leg pain turned out to be severe arterial blockages requiring stents rather than neuropathy alone. A recurring theme was uncertainty about whether medications like methotrexate or leflunomide might be contributing to nerve pain, with members beginning gabapentin for symptom management while seeking neurologists to explore all treatment options and get clearer answers.

A myRAteam Member

Yes my pain is constant and gets worse at night. Damage to nerves cause the pain but as I’m reading many answers to Q&A’s a few people said the drugs they were taking attributed to the neuropathy. My experience has been that methotrexate caused me severe pain that felt like bone pain and as if someone was twisting my ankles. When I went off of it the severe pain went away. I am now on the Leflunomide and I thought I was tolerating it well with very little side affects but now I’m not sure if it is causing my pain because the pain is getting worse again. I started gabapentin which is for the nerve pain but it hasn’t done much yet. I am also trying to get in with a neurologist. I have so many questions and I feel they can treat the neuropathy the best. I’ll keep you posted with any additional information I may find. Hope you start feeling better.

March 20, 2023
A myRAteam Member

Shelley6
May I ask what causes the pain in your neuropathy? Is it constant?

March 19, 2023
A myRAteam Member

Yes a neurologist is the one that can do a nerve conduction test. It’s definitely worth going thru. Not too painful especially if u compare it to the pain I go thru daily.

March 17, 2023
A myRAteam Member

Shelley6
Thanks for your response. My rheumatologist is the one that suggested the neuropathy when I asked why my feet hurt when the blankets and sheets are on them. It's so hard to sleep. May I ask what kind of doctor ordered the nerve conduction tests? I have a neurologist so should it be something I mention to her do you think?

March 16, 2023
A myRAteam Member

I also had a nerve conduction test which diagnosed the neuropathy in both of my feet. I have just started the gabapentin so not sure how it will work. I do know it won’t cure it. It will only mask the pain. I am now planning to see a neurologist to make sure I know all my options to combat this horrible thing. Let me know if you find any solutions.

March 16, 2023

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