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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone had experience with Rinvoq?

A myRAteam Member asked a question 💭
Beloit, KS

Anyone had experience with Rinvoq? I am afraid to try it because of possible side effects

September 29, 2021
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Answer Summary

Members shared their experiences with Rinvoq for rheumatoid arthritis, with many reporting positive results including reduced pain and... Read more

Members shared their experiences with Rinvoq for rheumatoid arthritis, with many reporting positive results including reduced pain and fatigue, though some noted mild side effects like increased urination, urgency, easy bruising, and nausea. Several members discussed their medication journeys, with some finding Rinvoq more effective than methotrexate or other DMARDs, while others had better success switching to biologics like Enbrel after Rinvoq did not work for them. A recurring theme was encouragement to weigh the risks of side effects against the potential relief from debilitating RA symptoms, with community members urging each other to stay positive, work closely with their doctors, and remember that doing nothing carries its own risks.

A myRAteam Member

I was on rinvoq for 5 months. I did not experience any side effects or really any effects at all. Unfortunately it did nothing to improve my my RA symptoms. I went off of it and went on injectable Enbrel which has been my best medication for RA yet.

April 22, 2022
A myRAteam Member

I've been on Rinvoq for a year. I have had better luck with it than any other drugs. Was injecting methotrexate but stopped it and markers did not go up. I couldn't see any help and Dr agreed on discontinuing the methotrexate. You mentioned urinary problems. I developed sudden urge and some leakage. Is this a side affect??? Thanks, Terry

November 25, 2021
A myRAteam Member

Unfortunately I lost a lot of hair with leflunomide. Literally within a month. I stopped taking it for that reason. Then it was rogain for 4 months. But my hair did grow back

October 16, 2021
A myRAteam Member

I will be starting rinvoq as soon as I have my shingles vax and the prism/Ra test. I had so many side effects to the dmards. I’m hoping I have better luck with the biologics

October 5, 2021
A myRAteam Member

I know the feeling about being concerned with side effects I start my new biologic meds in a few weeks try not to over think the side effects & think positive I’m sure all will be ok 🙂👌

September 30, 2021

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