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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Tulsa, OK

It is in the clinical trial phase at this time but I believe there is approximately 800 of us that have it.

April 13, 2024
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A myRAteam Member

I was supposed to be in that study, but my BMI was too high 🫤 The info on it was very cool, though. I can't wait to see what comes out of the study.

April 13, 2024
A myRAteam Member

I had Vagus Nerve Stimulator device installed as of 2008 for another health factor. Had no clue there were clinical studies for using the VNS with RA. I did just read an article on this in The Lancet that was quite interesting about the clinical testing and how the VNS has shown to be of a benefit.

I will be sending out a OneChart email to my RA specialist for his thoughts when he has a moment as I'm curious what his thoughts are on this activity.

April 14, 2024
A myRAteam Member

I was told that I qualified because my numbers were so high. I won’t ever forget the lady coming in to the room with a huge smile on her face saying “ woo hoo “ you are in !! She was so happy for me like I had just won the lotto! She said “ you got in because you have extremely aggressive RA “ !! When she realized that I didn’t share her enthusiasm, she immediately started apologizing. She is a sweet woman so I knew she meant well, I was just a little overwhelmed because in that very same appointment, was when I was told I had RA. 😂. Good times…

April 13, 2024
A myRAteam Member

I’d be interested in the rationale for use of this as I ve got problems associated with dysautonomia

April 13, 2024
A myRAteam Member

I can honestly say that I was in remission for the first 8 months after receiving it. I have had approximately 4 flair ups in all but I blame that on me no longer taking the injections.. also, I stopped taking the methotrexate as well. I am in the process of finding another rheumatologist so that is partially the reason I’m not taking Enbryl. I need to have something to coincide with the Vegas Nerve Stimulator because I’m considered to be at the “ end stage “ of RA.

Long story short, I believe getting this as soon as possible after receiving the RA diagnosis will give others the best chance at beating ( not curing, sadly ) this awful condition we share here. I know for me remission feels very much like a cure. 🥰

May 21, 2024

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