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A myRAteam Member asked a question ๐Ÿ’ญ
Naches Washington 509o650636

What are acceptable sed rate levels?.. what is average sed rate level with treatment? Mine is 82 and not changing.

August 22, 2019 (edited)
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Answer Summary

Members connected over the challenge of managing high sed rate levels during RA treatment, with many sharing that inflammation markers like... Read more

Members connected over the challenge of managing high sed rate levels during RA treatment, with many sharing that inflammation markers like sed rate and CRP can be slow to respond even when symptoms improve, and that acceptable levels vary widely by individual. Several members described their own treatment journeys, including starting on methotrexate (often at 10-20 mg weekly), adding or switching to biologics like Enbrel or Humira when methotrexate alone wasn't enough, and navigating complications like prednisone side effects or other overlapping autoimmune conditions. A recurring theme was trusting rheumatologists to adjust treatment based on both lab results and symptoms, understanding that RA treatment isn't one-size-fits-all, and leaning on each other for emotional support during the uncertainty of waiting for the right medication combination to work.

A myRAteam Member

Thx Connie. I s pretty inverted person as a rule, unfortunately I have been burned by several people in the past that hurt me very much so i pulled away from most except for for family. I have found it just keeps me from the list of people who have the ability to do so. I also have a grandson that just turned 9 i am raising and alot of my schedule is around him. Thx for the hugs ๐Ÿ˜˜

August 26, 2019
A myRAteam Member

Actually, when i went to The West Clinic to r/o myloma the Dr. said that he thought it was multiple connective tissue disease snd possibility scleroderma. Thats when my PCP sent me to the second Rheumatologist to my sure of the diagnosis and my fana score was 1:1280 positve. The rash was going nuts and I was a wreck, and just not in good condition and i was showing classic symptoms for both. On. brighter side, my IPF lung condition has not chaged at all since last year. I still have 66 0/0 percent of my viable lung capacity to use since I was diagnosed in 2015.

August 25, 2019 (edited)
A myRAteam Member

If u have RA and a connective tissue diease they sometimes consider it as Autoimmune system diease and it may in time affect other areas but ur Dr. would be able to make that decision and how to deal with it.

August 25, 2019
A myRAteam Member

I need to clarify the methotrexate dose. I am on 20 mgm/week which is highest dose recommended by mouth. I've read that they do give higher doses via injection .

August 23, 2019
A myRAteam Member

I wish I could go with you.. do. You have a friend who could go with you? My heart goes out to you..

August 26, 2019

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