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A myRAteam Member asked a question πŸ’­
Portland, OR
December 14, 2018
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Answer Summary

Members shared mixed but mostly positive experiences with Xeljanz for rheumatoid arthritis, with several reporting it has been working well... Read more

Members shared mixed but mostly positive experiences with Xeljanz for rheumatoid arthritis, with several reporting it has been working well for anywhere from a few months to two years, though one member mentioned it eventually stopped working for them. A recurring frustration was insurance coverage, with members describing the burden of high copays (potentially thousands per month), reliance on manufacturer samples, and the stress of trying to get approval, though some found relief through patient assistance programs and manufacturer discount cards. Several members also discussed practical considerations like preferring oral medication over injections to avoid site reactions, concerns about serious side effects, and the importance of researching new medications and advocating for oneself with healthcare providers.

A myRAteam Member

I am taking xel-janz for my RA. I have tried a large variety of drugs; this seems to keep bad symptoms at bay. I like being able to take pills; I tried injections (Humira, Enbrel). but I was prone to site reactions. I was one of my CT rheumatologist's original patients, and he knew I taught Chemistry, so we'd discuss pros and cons of different drugs. He wanted me to go on Prolia for bone growth, but I didn't feel comfortable after reading many patients' stories. I'd encourage anyone contemplating new meds to do research.

January 28, 2019
A myRAteam Member

I have used it now for a year and it is working fine for me.

December 17, 2018
A myRAteam Member

I went to another med. I'm still trying to get it approved by the insurance. But I'm getting samples of Orencia from the drs office. If insurance don't approve i don't know what I'm gonna do.😩 My doctor retired about a year ago and I'm seeing a NP for RA. I like him and he's helped me a lot. πŸ‘

December 16, 2018
A myRAteam Member

Did it just stop working or did you go to a different med?

December 16, 2018
A myRAteam Member

It worked for me for 2 years. But everybody is different. Try it you never know. 😜

December 15, 2018

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