If getting a second opinion is within your financial means...and, frankly, even if it is not, a second opinion is worthwhile...essential.
This is why I strongly urge you to do this, one more, two more, three more or more times. My primary doc diagnosed RD within my first two visits with her; that was probably a dozen or more years ago. I saw three rheumatologists in succession who were extremely highly regarded, and each was irritated by my insistence that I had constant joint pain, total exhaustion, fog and that something was not right. I sought out rheumatologist number three when my hand surgeon who had already repaired a trigger finger and carpal tunnel exploded at me because I went back looking for carpal tunnel surgery on the other wrist. His loud and clear message was that I had RD and he didn’t treat symptoms and I needed to have the disease, RD, treated. After reviewing my medical record, at least two inches thick with exam notes, test results, X-rays, and MRIs dating back ten years and THEN doing an exam and questioning me and LISTENING to me, my fourth rheumatologist immediately diagnosed me with RD. Too much time was wasted along the way, and it took far too long to begin treatment because of the minsdiagnosises which I believe in some small measure was because of negative RF. I believe that the severity of my RD today is what it is because of that delay in treatment.

My message is you know your body. You know how you feel. You know what your old normal was and what your new normal is. Run, don’t walk to a second, third, fourth....appointment until someone gives you answers that make sense to you. I’m not saying the diagnosis has to be what you expect; after all, you are not a rheumatologist; but the diagnosis has to adequately address every question, every concern, every suspicion you have. If these are not addressed to your satisfaction, keep running.

About the skin pain you have—you may want to ask about fibromyalgia as you continue to seek answers. Fibromyalgia is often RD’s travel companion.

I wish you a speedy, correct diagnosis and speedy, efficacious treatment. Please stay in touch. I feel your angst.

To me ,a high Ccrp is an indicator of RA . 10 being normal . So think of it as being 6x normal.
Something is doing damage to your body. I would say that your medication isn't slowing your problems. Inflamation is only one part of RA. As someone who has lived with it for to long, damage to your tissues happens faster than people think. Waiting around for tests and seeing doctors takes too long. If you feel your medication isn't working ,get it changed.

It does sound more like fibromyalgia. There's really no blood test for that. I have it along with RA. Ask your doc about Savella. It worked much better than Lyrica. Have you had an RA factor done?

Thank you!

Yes, i can see how quickly my skin, knees, etc has changed. My knees started to grind badly and getting worse every month. My skin is very sensitive and blotchy. Sometimes my fingertips go dark blue. But again- Raynaud's tests were negative. Even my veins seems to be shrinking:)

I got Social Security disability only after couple months from my diagnose cause i couldnt use my hands- skin on my palms hurt so much. I think it might be a fibro as well.

Have been on healthy diet ( no diary, wheet etc) and try to walk 6 ...10 km every day. Now using tumeric, msm powder, fish- oil, ginger etc.

I would recommend doing whatever makes you feel better and what satisfies your constant questions. I say this because over 10 years ago, I was diagnosed with RA. As you, it struck out of nowhere in the middle of the night. Went to bed totally normal, the following morning, I couldn't get up without help! Total devestation! I took methotrexate without any help. I've tried others and pain management. No help with those either. I chose not to take any RA medicines. Personally, I feel the side effects are too great. I have not been satisfied with my diagnosis. I've been researching reactive and infectious types of RA. I try to control mine through diet and some supplements. So far, that is what is helping mine. Good luck!