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Clumps of hair are coming out when I take a shower. Even when my hair is dry a lot comes out. When I stop taking methotrexate how long will it be before my hair grows back?
Answer Summary
Members openly discussed the distressing reality of hair loss while taking methotrexate, with many experiencing significant thinning or clumps... Read more
I think I was only on methotrexate 3 or 4 months. I color my hair at home. I did color it but instead of every 6 weeks while on methotrexate I waited as long as possible between colorings. I don't remember the recommended dosage of folic acid but I believe, I was something like 1800 mg, I could be wrong about the mg. It was over two years ago. I got off methotrexate, if you're not seeing any improvement in pain, see your doctor, get off of methotrexate, try something else! Unfortunately, there is no magic one drug fits all for this wonderful condition. Don't give up! I'm struggling to find something that works. Thought remicade infusions we're great when I started. Now they have upped my dosage and shortened the length between dosages and I am not getting as much relief. So next month at my regularly scheduled doctor appointment I will be again discussing what can be done to get a better result. I'm trying to eat anti inflammatory foods but feel like I have to eat so much to get any relief at all. I wish insurance companies paid for massages, acupuncture, and other alternative medicines. I would definitely try other ways to deal with this disease.
Are you taking folic acid? It seems to help...
@A myRAteam Member - my hair thinned A LOT with Methotrexate. I read somewhere that someone who experienced hair loss on treatment actually kept the hair in a bag and then put it out for the birds to use for nesting material...so that is what I did during that time. Somehow it gave it all purpose. If I remember right, the thinning slowed down after a while. I am no longer on Methotrexate now though and my hair is as thick as ever again.
I was taking folic acid and still had major hair loss, caused me to become depressed. I used special shampoo and conditioner for a couple of months and my hair came back. I liked methotrexate because I felt so Good on it, but I couldn't stand the hair loss, moved to other meds, had other side effects, then got the remicade infusions, worked well for awhile, now not so much. Don't stress over it, look up hair loss and shampoo and you should get multiple results. Hope this helps!
It depends how bad it got but usually 1-3 months
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