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A myRAteam Member asked a question 💭
Chicago, IL

I have heard a few doctors talk about it.

April 17, 2018
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Answer Summary

Members shared mixed experiences with minocycline for treating RA, with one person experiencing severe dizziness and vomiting that required... Read more

Members shared mixed experiences with minocycline for treating RA, with one person experiencing severe dizziness and vomiting that required emergency treatment while another felt better after starting it despite ongoing pain. Several members expressed willingness to try minocycline as an alternative to DMARDs like methotrexate, though the consensus leaned toward viewing antibiotics as a temporary option rather than a long-term solution since RA is not caused by germs and prolonged antibiotic use carries risks like resistance. A recurring theme was frustration with treating symptoms rather than root causes, the trial-and-error nature of finding what works for each individual body, and community support for exploring different paths while staying cautious and consulting with doctors.

A myRAteam Member

I’ve experienced the same with Humira and embrel, my dr is trying me on orencia now and four months systhoms are better and no infections so far. Took a while to get insurance to approve but it seems to have been worth the wait. Hope you the best...

April 19, 2018
A myRAteam Member

That is a link that discusses the pros and cons of using the minocycline for RA

April 20, 2018
A myRAteam Member

https://www.arthritis.org/living-with-arthritis...

April 20, 2018
A myRAteam Member

The doc tried me on it. I have a very touchy system that rejects meds a lot. So on the 3rd dose i started to feel awful. My head was spinning. I felt like throwing up. I left work and went home and thank god I did. By time I got home I was vomiting from dizzyness. Three hours later I could not move my eyes I was so dizzy and it would like me vomit. My husband spoke with my DR and she had him take me to the hospital where they gave me meds to stop the spinning. And they said it was the antibiotic. I stopped the meds and the next day I was fine... Its worth a shot. It doesnt work for eveyone but you might be one of the lucky ones!

April 20, 2018
A myRAteam Member

I agree, everyone is different and different things work for different people. I myself don't take DMARDS or any Prednisone. I have been managing it for the past 2 yrs with healthy/gluten free diet,heavy supplementing and medical marijuana. I been able to manafe it with a few bumps on the road. @A myRAteam Member i hope that's all to it also and that all is well 😊. @A myRAteam Member insurance companies are a pain but I'm glad you got your medication.

April 19, 2018

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