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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question ๐Ÿ’ญ
Palatine, IL

So I am beyond confused all I am on is MTX and Enbrel... Prednisone never worked and the dr tried a couple others but didn't work but I feel like I should been on a steroid....

October 2, 2016
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Answer Summary

Members rallied around someone questioning whether they should be on steroids despite trying several without relief, with the overwhelming... Read more

Members rallied around someone questioning whether they should be on steroids despite trying several without relief, with the overwhelming consensus being that avoiding long-term steroid use is often best due to serious side effects like bone weakening and other complications. Several members shared their own experiences, including steroid injections every few months for swelling relief, low-dose daily prednisone for maintenance, and using steroids only as short-term bridges while starting biologics or during particularly tough flare periods. A recurring theme was the importance of finding a compassionate rheumatologist who listens and believes your pain, with many encouraging the original poster to seek a new doctor who takes their concerns seriously and provides proper follow-up care.

A myRAteam Member

Don't take steroids unless you absolutely have too and if you do don't be on them for a long time as they cause more problems after long term use.xx

October 2, 2016
A myRAteam Member

I agree about changing doctor if you think they don't care, but it's better the devil you know sometimes... My rhumy is ok ish!!! But seeing rhumy nurse now and she is fantastic, caring and talks to me like she knows how I feel.... My rhumy says excersise, loose weight then when he says the pain is from ware n tear I say, well I won't move then I can't ware n tear it!!! But then says no I can't do that.. ???? If your hands aren't swelled up then your not in pain.... So annoying n upsetting cause you think your going nuts.... They moan about giving me Steriod injection every 3 months n can only have it every 4 months?? If I can hang on that long.. Good luck bout changing .... Xxx

October 2, 2016
A myRAteam Member

Hi HateuRA,
I switched doctors for the same reason. Seemed like she had no clue what was wrong and maybe didn't believe my pain. It's so important to have a doctor that you feel is understanding what you are going through. I was wondering if there was a doctor out there who had RA. It's hard to understand something you don't experience yourself. And steroids are great short term but can have horrible effects on your body in other ways. Good luck with the search. It's so hard to feel like you are starting over again but well worth it to find that Doctor that you trust. Hang in there!!!! I wish I could hug you! ๐Ÿ˜˜

October 2, 2016
A myRAteam Member

Hi there, I wouldn't worry about not being on that nasty drug, it works for a lot of people but if it didn't work for you no problem.... I have a Steriod injection in my leg.. Big ouch!!!! ... Every 4 months which helps me considerably, it takes all my swelling down in my hands and feet n I feel so much better.... As long as your feeling ok that's all that matters.. Have a good day. X

October 2, 2016
A myRAteam Member

Unless you are really needing a steroid avoid them as far as I'm concerned. And if you can get off them when you can that would be better. They have their place but long term use causes it's own problems. Ask your doctor about the effects on your body or google it (better to ask doc).

October 31, 2016

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A myRAteam Member asked a question ๐Ÿ’ญ
Anacortes, WA