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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Actemra

A myRAteam Member asked a question 💭
Winnipeg, MB

Took my first injection of Actemra 18 days after my last injection of Humria. My doctors nurse told me it is normally 2 weeks in between injections. Then after I have taken the injection I'm told to wait 30 days. I have no side effects - still in pain but I know that takes time.

Question is why the 30 day wait. I only waited 2 weeks after stopping Embrel and starting Humria be a useful I was sick withis a cold. Has anyone taken Actemra too soon and had any problems.

I was only on Humria… read more

September 13, 2016
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A myRAteam Member

I've been on Actemra since June 2017 ( almost six months) and it has helped me incredibly. I do a weekly injection in my thigh. I've gone from being in incredible pain all over my body daily to almost being able to function 100% normally. Took about four months for the meds to kick in and be as effective as they have been. My hands still swell a little bit a few times a week and I still feel it in my shoulders and occasionally knees in the morning and evenings, but it's so small I don't even care. I've lost more weight than I would like since June (about 10lbs) but I've also been sick a few times and have had weight loss issues (as in losing too much) since I had a baby in Dec 2016, so I can't say it's definitely related. I have been having a lot of trouble putting weight back on which has been frustrating and I suspect is related to the Actemra.

November 29, 2017
A myRAteam Member

My doctor only had me wait one week after stopping Humira and switching to Actemra- I had no problems!

October 12, 2016
A myRAteam Member

Just starting to feel better after 5 infusions!

September 24, 2016
A myRAteam Member

I'm going on a monthly injection. Not sure of the cost yet. Waiting for my approval letter from the province before I can start.

Actemra was the cheapest one so far.

January 26, 2017
A myRAteam Member

Thanks Debbie. Saw the doctor today and I'm off Actemra. Now onto Simponi (Janssen) let's see if this helps.

January 24, 2017

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