1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!
2. Hands and wrists- always dropping stuff, can't open anything
3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.
4. Mental clarity is… read more
Amen... I read this and almost started crying cause I too feel the same. I too at times have a testy relationship even tho he knew I had ra when we met and bless that man's heart for taking such great care of me when I think I still can do like I use to ten years ago. I get snippy on my bad days and he just holds me and let's me cry. Blessed are those who take care of US who suffer from invisible disorders
RA took my confidence. I feel sometimes alone because people that I love do not understand my pain. I just to be very active, I would spend lots of time with my husband working out. For me life used to be a go go. Now, I am more passive. i need to take time to rest. I can not do with my husband the same things we used to. He goes to sky by himself. I am in pain all the time. Even when I am not in a flare. I get tired very easily. I am having to much trouble to sleep due to the pain. I can feel every article from my body. I try to pretend I am ok because it is frustrating to feel bad all the time. But it is exhausting and painful.
I don't know why the doctor would say it only affected certain vertebra in the neck. Anything that is a joint can be affected!
My article says it best:
I am in an abusive relationship.
My abuser controls everything I do!!!
What I can eat, what I can wear, when I can put on makeup, how I do my hair, who I can talk to, when I can leave the house, and what I can do.
Sometimes my abuser won’t let me sleep…at all.
My abuser has harmed me. Caused me a lot of pain, anxiety, stress, and physical, mental and emotional problems.
Every. Single. Day.
My abuser has made it so friends and family no longer come around. What a control freak!
My abuser has harmed me so much that I can’t think straight anymore.
My abuser makes me so very angry!
But my abuser won’t listen to me, won’t go away and won’t leave me alone! No matter what I’ve tried!
I’ve gone to professionals but what they did for me didn’t help…it made things worse. Now I don’t feel I can trust them.
I don’t know where to turn or what to do.
I wish I would have never met my abuser!
The name of my abuser?
Well, I would have to say that it stole:
It stole my younger years.
If stole my ability to have more children.
It stole relationships, even putting strain on my marriage.
It stole my self esteem. Feel depressed!
It stole my inner strength and fight at times.
It stole my ability to do and enjoy a lot of things.
It stole many things, even my faith at times.
Now I try to put my trust in that faith, and when there are bad days, I try to trust that tomorrow is a new day with
new possibilities. There may be several bad days in a row, and it can put a damper on that trust. Then a better day comes along building that trust back up again.
My health...im always stuck in bed, constant dr visits, tons of meds, problems everywhere feet, ankles, knees, legs ,hips, back, shoulders, elbows, wrists, hands ,neck ,fingers.
Have neuro issues, endocrine issues, bladder issues, vision issues, edema issues, sleep issues , depression, and are in a wheelchair now.
I cant do the things i once did with ease like cook , clean, shop, do laundry, drive.
I dont drive anymore, dance anymore, my stuff i did for fun is done
I cant get out and play with my grandkids.
Its stole the way i looked.
It stole my life ..as i knew..now i have to adjust to my RA life