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Rheumatoid Arthritis

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Did Methotrexate Stop Working For You?

Did Methotrexate Stop Working For You?

I have been on methotrexate since June and it was effective for a few months, however, out of nowhere the pain came back even worse ! It's weird because the pain is better in some places and worse in others. My doctor has introduced me to biologics, so I've been reading about my options. We will discuss them in our next appointment. I am nervous though because there are a lot of risks involved. What has your experience been like? Has any of the biologic response modifiers… read more

A myRAteam Member said:

I've been on Enbrel for 12 yrs. now but my Rheumy and I think i"ve built up a tolerance so we will try another one

posted over 2 years ago

Do Biologics Make You Gain Weight?

Do Biologics Make You Gain Weight?

im suppose to switch to a biologic next month and i have heard mixed responses about weight gain from biologics

A myRAteam Member said:

I’ve been on a biologic for almost 7 months and i haven’t noticed any weight gain. They have helped symptoms significantly though

posted about 2 years ago

Biologics

Biologics

What is the best biologic to take? The shot at home kind (not iv infusion) What would you not recommend as well? I was told today by a second opinion that I was going to need one.

A myRAteam Member said:

from what i read , there is no best one, everyone responds differently,

posted about 3 years ago

Out Of Biologics

Out Of Biologics

So, apparently I have tried all the biologics that exist for RA. Has anyone else had this happen? What did youe rheumy do next? I'm feeling lose and hopeless at this point.

A myRAteam Member said:

I have never felt normal. The shooting pains go away with biologics but fatigue is always there. I just had to get used to a new normal. I have had it… read more

posted over 2 years ago

When Can One Stop Taking Biologic Drugs, It They Have Been Successful?

When Can One Stop Taking Biologic Drugs, It They Have Been Successful?

My RA has responded very well to treatment with biologics (originally Humira, now Cimzia), and in fact I haven't had any significant inflammation for 6 years. My rheumatologist does not want to stop the treatment because (1) if the inflammation returns, it will take 2-3 months for a biologic to resume its effectiveness, and (2) I have permanent joint deformities from earlier when the RA was not under control. On the other hand, I don't want to… read more

A myRAteam Member said:

Ya, we all hate taking our RA meds...until we find out what life is like without them.
Thank God for these excellent safe RA meds.

edited, originally posted 2 months ago

Biologics And Weight Gain 😬

Biologics And Weight Gain 😬

Hi all,

I've been on Remicade infusions for a year now and have steadily gained about .5 pound every month - up a total of six pounds since starting the meds. No changes in activity level or calorie intake (I work at a gym so am as active as RA allows me to be and as is necessary for my job).

I've read online about weight gain and biologics. Has anyone else experienced this and did you find that your weight eventually plateaued? The doctor is concerned about keeping me on the medication… read more

A myRAteam Member said:

Unfortunately you’ll have watch every calorie and exercise as much as ur body allows....u will lose the weight with strictness to food intake. Assuming… read more

posted 6 months ago

DMARs And Liver Levels

DMARs And Liver Levels

I was taking sulfasalazine but it made my liver levels go up so the rheumatologist took me off of it and put me on Plaquinel. I've been on the Plaquinel for 2.5 months and it's not helping at all. On top of that my hair has been falling out since I started taking it. The rheumatologist said that it's very unlikely that the Plaquinel is causing the hair loss. And he doesn't want to put me on any other DMARs because they will all cause liver levels to go up. He doesn't even want to entertain… read more

A myRAteam Member said:

Not a clue. Honestly I am going to give this doc one more chance at my follow up and if he doesn't want to do anything I'm going to look for a new doc.

posted about 3 years ago

Have Many Of You Guys Had Multiple Joint Replacements In Your Elbows, Shoulders, Or Wrists?

Have Many Of You Guys Had Multiple Joint Replacements In Your Elbows, Shoulders, Or Wrists?

As my disease progresses and treatments fail, more of my joints are involved. Last year I had my right hip replaced. This month I'll have the left replaced.

However, my wrists, especially my right one, is swollen and sore over 90% of the time. My shoulders are also hurting more often. So my question is, do I continue to replace each of my failing joints since none of the meds are working? Where does this madness end? Have… read more

A myRAteam Member said:

I've had my toes fused and two knee replacements think right hip will be next.

posted almost 3 years ago

Methotrexate Use Only

Methotrexate Use Only

Hello everyone! I hope you all are well. I just did my second dose of methotrexate yesterday .5ml injection. No problems. I still have stiffness in my fingers and wrist and a little flare in my shoulder and jaw but Alevs took care of that. Next month my doctor is moving me to 1ml per week of methotrexate. I'm wondering if any of you just use methotrexate only and no biologicals. I pushed her to start me on them right away but because I have minimal swelling and too few joint involvement she… read more

A myRAteam Member said:

I just take Methotrexate and have done for18 months, i am in remission but do get flare ups now and then, hope to delay taking anything else as long as… read more

posted 6 months ago

How Many Of You Are Losing Your Biologic Coverage In 2017? What Are You Doing About It?

How Many Of You Are Losing Your Biologic Coverage In 2017? What Are You Doing About It?

Hi RA Team: I've been on Medicare and had a supplement - BC/BS for the past few years. I've been thru the regiment of the biologics - Humira, Enbrel, Rituxan, Remicade, Orencia, Xeljanz ..... now I'm on Simponi which is "covered" at a reduced rate at a Tier 5 level. However, come Jan. of 2017, it will no longer be a covered RX :( I've been on just about every other biologic available. Any suggestions on a Medicare supplement… read more

A myRAteam Member said:

I'm 56, on Medicare because of disability and get Orencia infusion once a month. I also pay for a.supplemental insurance (United Healthcare plan F )… read more

posted over 3 years ago