I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?
I'm so curious to know how those of us with suppressed immune systems deal with people around us who are sick (like your coworkers, significant others, etc.).
For some background, a few of my colleagues and I went out to lunch today, and only after we had been at lunch for a bit did I find out that one of them has pneumonia. She said she's on antibiotics and isn't contagious, but immediately my mind went into "evacuation… read more
I am recently diagnosed by my PCP. I was experiencing significant bi-lateral pain in hands, knees, and wrists. While I wait to see the rheumatologist he referred me to he prescribed 12 days of prednisone starting with 30 MG and tapering from there. Started the first step of taper today. Yesterday and today I have felt better than I have in over a month. My question is this...how long can I expect to be pain free as the dosage tapers and stops? Not looking forward to the pain again. I didn't realize… read more
I have just stopped Plaquenil as suffering from significant hair loss - very distressing! Do people know if it regrows ok after stopping medication?
I just took my third dose of Erelzi, which I take once a week.
I have not noticed significant improvement yet, I am wondering when I might expect to find out if my new medication is working or not.
Thank you again everyone, for your input.