Rheumatoid Arthritis

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When to see a pain doctor

When to see a pain doctor

I've failed Enbrel, Remicade, and Xeljanz. Now I'm awaiting approval for Orencia. I'm hurting a lot. My right hip has hurt for 8 months and many of my larger joints hurt a lot. I'm supposed to take prednisone, which works, of course, but I cannot sleep on it and I hate the weight gain... Duh. Narcotics make me sick, so I don't want them, but I wonder if I should see a pain doctor. In a weird way, I feel like im betraying my rheumatologist if I do, though. Thoughts? Experiences? When is… read more

A myRAteam Member said:

I tried Enbrel, Humira, and Xeljanz neither worked for me .... my rhemy put me on Cimzia bi-wkly (200mg) injections delivered to my home. I inject the… read more

posted about 2 months ago

Are you using any sort of stimulant?

Are you using any sort of stimulant?

I can say that I finally am at a content place regarding my daily pain levels (without the use of any pain meds might I add). At this point I believe it is safe to say that Remicade is doing it's job.

However, my quality of life is still piss poor. Fatigue has always been a chief complaint and at this point I don't know what to do. I don't have the stamina to do much of anything and I require more than frequent breaks and cannot make it without multiple naps to get me through… read more

A myRAteam Member said:

Have your Dr's check your vitB6 and B12 levels. I was bottomed out on my B6. My neurologist said she was shocked that it was so low, and that I was even… read more

posted 10 months ago

Switching from Remicade to Orencia

Switching from Remicade to Orencia

I have found out the hard way that Remicade no longer works as well for me. I have been on it since 2008.
I will be changing to Orencia. What should I expect and what should I watch out for?
Thanks.

A myRAteam Member said:

Kidney dr just did lots of blood work, shows Anca positive for lupus as well as having RA rheumatoid dr switching me to Orencia infusion in two weeks.… read more

posted 12 months ago

Remicade

Remicade

is there a needle form of remicade

A myRAteam Member said:

yes I think its the same as inflix which I have every 2mths in hospital on a intra drip and that's also helped me a lot along with my metho, took a… read more

posted 5 months ago

How soon after Remicade infusion did you experience stomach issues?

How soon after Remicade infusion did you experience stomach issues?

Hello -

For those of you that have knowledge regarding Remicade and side effects, I had my second infusion on Wednesday and was doing well until Thursday afternoon when I started feeling extremely nauseous. I called in sick to work this morning and am starting to experience some other GI issues (feeling like I may have diarrhea).

I know this can be a side effect of the medication but there is a stomach virus going around at work. I also… read more

A myRAteam Member said:

No more nausea and have completed my loading dose but I'm losing a lot of hair - about 1/3 of my hair has broken off (not fallen out at the roots but… read more

posted 7 months ago
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