Rheumatoid Arthritis

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What were your symptoms after 1st Cimzia Injection? Mine weren't Good.

What were your symptoms after 1st Cimzia Injection? Mine weren't Good.

Doc said I was a Mx failure since my joints still hurt after being on Mx for five months. Tried Humira but had hiccup coughs shortly after injections and then broke out in poison ivy like hives had the same reactions but worse after the second injection. Hives biopsied and was allergic. Kept on Mx but stopped taking it after repeatedly getting upper respiratory and sinus infections. Doc tried me on Cimzia yesterday. Immediately after the… read more

A myRAteam Member said:

I just started on Cimzia three weeks ago. I did not have a reaction with the first set of shots, except for some overload of fluid in my ankles. I just… read more

posted 3 days ago

HOW LONG DID IT TAKE BEFORE YOU FOUND THE CORRECT RA DRUGS TO COMBAT YOUR FLARES and not need prednisone?

HOW LONG DID IT TAKE BEFORE YOU FOUND THE CORRECT RA DRUGS TO COMBAT YOUR FLARES and not need prednisone?

I have been in endless wrist, hand and now shoulder flares for the past nine months. diagnosed in late 2017 and put on methotrexate and enbrel. Both stopped working late December 2018. Then the massive painful flares began. Worse than when first diagnosed.
Tried humira and xelzanze, did not work. Now dr brings out the big guns, IV infusion acterma. After 3 months STILL not working and still need to take 20mg… read more

A myRAteam Member said:

Get medical cannabis LEGALLY in ALL 50 states. Regardless if your state offers a medical cannabis program or not.
CBD products as well.
$240 for an… read more

posted 5 days ago

Options to Humira?

Options to Humira?

When I go on Medicare in a year my Humira will not be affordable to me at 33% co-pay. I have had a great ride with it for 12 years. My doctor has given me these names of infusions to explore: Orencia, Actemka, and Rituxan. I'm also curious about CBD oil, but don't know where to start (dose, topical or drops). My rheumatologist is open to trying, but says there isn't enough research for her to recommend, but that if I do try, the clinic at large wants to know about experiences of patients.

A myRAteam Member said:

Praying things work out for you.

posted about 1 month ago

Anyone wish to share their experience with Rituxan infusions?

Anyone wish to share their experience with Rituxan infusions?

I have successfully benefited from methotrexate for 30 years to keep my RA manageable. Now I've entered the "for which methotrexate no longer works" phase and trying to decide if Rituxan infusions is my next plan of attack. (Humira injections were not successful.) Also considering Actemra injections. Any advice on efficacy, side effects, long-term concerns, etc. of both medications is appreciated. Keeping the faith.

A myRAteam Member said:

After much consideration and consultation with my rheumatologist, I have decided to try Orencia self injections. My concern with all, but especially… read more

posted 18 days ago

Does RA make you loose your mind?

Does RA make you loose your mind?

I'm not talking brain fog that clears. In the past I have been able to learn new things easily, block out noises, etc around me if I needed to read something & understand. But now I find this a lot harder. Some days worse than others. I have ADHD, that doesn't help this when it comes to things that I'm not particularly interested in. However, I've always been able to hyperfocus on things when they interest me, that is until about 5-6 years ago and I find it getting worse. It… read more

A myRAteam Member said:

@A myRAteam Member, I think that happens to everyone as they get older, and RA or other issues certainly complicate it. There's so much that is going on… read more

posted 4 months ago
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