Doc said I was a Mx failure since my joints still hurt after being on Mx for five months. Tried Humira but had hiccup coughs shortly after injections and then broke out in poison ivy like hives had the same reactions but worse after the second injection. Hives biopsied and was allergic. Kept on Mx but stopped taking it after repeatedly getting upper respiratory and sinus infections. Doc tried me on Cimzia yesterday. Immediately after the… read more
I have been in endless wrist, hand and now shoulder flares for the past nine months. diagnosed in late 2017 and put on methotrexate and enbrel. Both stopped working late December 2018. Then the massive painful flares began. Worse than when first diagnosed.
Tried humira and xelzanze, did not work. Now dr brings out the big guns, IV infusion acterma. After 3 months STILL not working and still need to take 20mg… read more
When I go on Medicare in a year my Humira will not be affordable to me at 33% co-pay. I have had a great ride with it for 12 years. My doctor has given me these names of infusions to explore: Orencia, Actemka, and Rituxan. I'm also curious about CBD oil, but don't know where to start (dose, topical or drops). My rheumatologist is open to trying, but says there isn't enough research for her to recommend, but that if I do try, the clinic at large wants to know about experiences of patients.
I have successfully benefited from methotrexate for 30 years to keep my RA manageable. Now I've entered the "for which methotrexate no longer works" phase and trying to decide if Rituxan infusions is my next plan of attack. (Humira injections were not successful.) Also considering Actemra injections. Any advice on efficacy, side effects, long-term concerns, etc. of both medications is appreciated. Keeping the faith.
I'm not talking brain fog that clears. In the past I have been able to learn new things easily, block out noises, etc around me if I needed to read something & understand. But now I find this a lot harder. Some days worse than others. I have ADHD, that doesn't help this when it comes to things that I'm not particularly interested in. However, I've always been able to hyperfocus on things when they interest me, that is until about 5-6 years ago and I find it getting worse. It… read more