Rheumatoid Arthritis

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Is anyone else considering cutting dosage and hoarding or weaning off meds in case AHCA passes? What's your plan?

Is anyone else considering cutting dosage and hoarding or weaning off meds in case AHCA passes? What's your plan?

If AHCA passes, Medicare will be gutted. I can no longer work except sporadically, so I depend on it exclusively for RA medications, migraine preventives and rescue injections, and all the med-related testing that goes along with RA. I am worried that if I don't start phasing back sooner rather than later I will suffer when my insurance disappears. I already only use migraine injections when I… read more

A myRAteam Member said:

Yes, but Medicaid IS my insurance, and the only coverage I have. But it's good to hear about others' experience with different RA meds; I am still early… read more

posted over 2 years ago

Sudden Numbness in lower legs

Sudden Numbness in lower legs

After working 2/12 hour shifts. I went to sleep. Upon awakening no pain was present in the lower legs but toes were tingling like they were asleep.
Thought getting up and moving around would help. But was wrong it got worse.
Husband took me to the ER. The dr didn't believe me and almost laughed while watching me try to walk. I was shaky and really week all over.
Dr looks at husband and asked do you have a walker at home. Well no he exclaimed. Then labs came back and blood work read… read more

A myRAteam Member said:

Maybe 12 hours is too long to be on your feet? Do you wear orthotics? If not, they could help distribute your body weight to the entire foot. I agree… read more

posted over 2 years ago

Any thoughts on dealing with rheumatoid arthritis and hiv ?

Any thoughts on dealing with rheumatoid arthritis and hiv ?

A myRAteam Member said:

Best to have your rheumatologist and your infectious disease doctor consult together in developing ur optimal RA treatment plan, as your treatment… read more

edited, originally posted 16 days ago

Family Support

Family Support

I was just diagnosed two days ago although I have been having the issues for over a year now I took me 8 months to get in to see a rheumatologist for him to run tons of tests and then tell me nothing. I knew something was wrong it isn’t normal for someone to hurt like this. I got to the point 3 months ago that I can’t walk in the mornings and evenings cuz the pain is so horrible and I can’t for the life of me get my husband to understand that I need help with things and I can keep up like I used… read more

A myRAteam Member said:

Have you heard of Low Dose Naltrexone? - https://www.ldnresearchtrust.org/what-is-ldn. I'm waiting to be prescribed it privately in the new year I wish… read more

posted about 1 year ago

Rheumatoid Arthiritis

Rheumatoid Arthiritis

I'm still new to all this and haven't been able to find out much and I'm sure this is going to sound ignorant or stupid. I was diagnosed at the back end of October last year, but trying to talk to the Rheumatologist about what to expect, he wasn't interested in answering, he didn't even want to listen to my medical history either. He was a bit rude to be honest. So I have a few questions that I'm not sure can be answered but here goes. What are the signs that you are having a flare up? Is… read more

A myRAteam Member said:

@A myRAteam Member Please don't leave our RD community. It is not just for people in the United States. There are people from all over the world who… read more

posted over 3 years ago

Acupuncture

Acupuncture

Has anyone tried acupuncture for RA and side effects? What were the results?

A myRAteam Member said:

How many times did you have acupuncture before you knew that it did not help you? I have gone twice already, and not sure if I should continue.

posted over 3 years ago

Can I claim PIP in UK if I have RA and work full time?

Can I claim PIP in UK if I have RA and work full time?

My sister insists that I can apply for PIP in UK as I have RA. Even though I work full time additional financial support would be useful due to increased cost of heating in cold weather, complimentary treatment, expensive footwear and special diet.
Thanks

A myRAteam Member said:

Hi all,
Wanted to thank all those of you who replied and gave me such useful advice. Much appreciated. Wishing you a pain free or as pain free possible… read more

posted 11 months ago

Do you experience feeling sick to your stomach when you have a bad flare?

Do you experience feeling sick to your stomach when you have a bad flare?

I get dizzy, throw up and pass out

A myRAteam Member said:

Yes I've started having lots of dizziness, nausea and vomiting. Mtx use to bother me but it might be now.

posted about 2 years ago

Methotrexate

Methotrexate

My blood test came back with elevated liver. What can I do to help reduce this?

A myRAteam Member said:

yes thistle will help

posted over 1 year ago

Methotrexate dosing?

Methotrexate dosing?

Hi! I was just wondering if anyone knew what the normal or average dose of methotrexate was for treatment of rheumatoid arthritis. I understand it varies based off of how aggressive it is, but I'm just wondering if I should expect my Rheumy to bump up my once weekly 20mg dosage of Rasuvo (injectable methotrexate) at my next appointment. Just curious is all, thank you in advance!

A myRAteam Member said:

I'm on 25mg injections, and I think that's as high as is allowed for RA.

posted over 3 years ago