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This is why I joined this group. I cough and cough. Been on Actemra for a year and 7 months. It keeps me up at night. I really like Actemra, it works great for me....if I could just get help with this… read more
Blood tests and a hand x-ray taken last week show that my RA is progressing rapidly. I have been on Orencia for more than a year. I thought it MIGHT be helping, but it clearly is not. Enbrel did made me worse. Avara did not work at all. I cannot take MTX for same reason as Enbrel. My choices are Remicaid, which I nixed because it is only infusion and the possibility of brain infection that cannot be cured. I'm always part of the "Less than 1 percent" of the people. My choice are Xeljanz or Actem… read more
I have been on Actemra 12 weeks /8 weeks they doubled dose after 12 weeks and I feel almost back to my normal self. My hands still don't make a fist but have had no pain can get up and out of a chair… read more
I spoke with my Rhumy yesterday and instead of starting me on Rituximab, he is going to start me on Actemra, he just first needs to get approval from our provincial health plan so I don't go broke. Has anyone been on this and what did you experience?
I was on the infusions and as they had worked so well for me my Rheumy decided to not switch me to the injections. Certainly would have been more convenient than going to an infusion clinic. I found I… read more
Thanks for your comments. I had my infusion yesterday. I have had no side effects since being on Actemra I have RA throughout, mainly in spine. I still need to be on RX pain medication, trigger… read more
Going into my question I know everyone is different my question is has any Dr.prescribed actemra knowing you have a lot of health issues that aren't even being addressed and the lower risk drugs you have tried always causes some kind of problem I seem to suffer problems such as listed under side effects now without drugs. Just between a rock and a hard place trying to decide if it's worth the high risk?
Hi - I have been on Actemra for a year and 7 months. It is really helping me - it's my 5th treatment in 4 years. I also do a low dose prednisone, 6 mg a day currently. Trying to get it lower. Back in… read more