What a frustrating situation — two experienced rheumatologists confirmed your RA diagnosis, and now you're feeling unheard and undertreated. That's genuinely tough, and your concerns are completely valid.
Seronegative RA is a real and recognized form of RA. It simply means certain antibodies don't show up in blood tests Show Full Answer
What a frustrating situation — two experienced rheumatologists confirmed your RA diagnosis, and now you're feeling unheard and undertreated. That's genuinely tough, and your concerns are completely valid.
Seronegative RA is a real and recognized form of RA. It simply means certain antibodies don't show up in blood tests, which can make diagnosis trickier — but it doesn't mean RA isn't there. Here are some steps worth considering:
- Request your previous records — Ask for documentation from your two prior rheumatologists, including their diagnosis notes, imaging, and test results. This gives your new doctor concrete evidence to review.
- Seek a third opinion — It's completely reasonable to consult another rheumatologist, especially given your history. Look for someone experienced with seronegative RA.
- Advocate for pain management — Living in unmanaged pain while undergoing testing is not acceptable. Raise this concern directly and firmly with your doctor.
- Check your insurance — Many insurers cover second opinions, sometimes even virtually, which can reduce the burden.
A myRAteam member once shared a similar experience, saying they wished their rheumatologist had paid closer attention to symptoms so treatment could have started sooner.
You know your body. Don't be afraid to push for the care you deserve.
2 days ago
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