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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone know the relation RA may have with MCAS?

A myRAteam Member asked a question 💭
Childress, TX

I have rheumatoid arthritis fibromyalgia uctd and a few other things. However my daughter has histamine intolerance and we have been having a lot of issues she is 6 years old and I'm not sure what triggered the issues but her Labs have been extremely high for different things and I am going to try to take her to a rheumatologist she is seen a neurologist they determined she is hypermobile but not enough for EDS. Her allergist did testing and they have determined she is histamine intolerant. My… read more

August 5
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myRAteam

What a caring and proactive parent you are for advocating so strongly for your daughter. That instinct to connect the dots between your own health history and hers is completely understandable.

MCAS isn't something covered in the available RA-focused information here, so it wouldn't be right to speculate on that connection Show Full Answer

What a caring and proactive parent you are for advocating so strongly for your daughter. That instinct to connect the dots between your own health history and hers is completely understandable.

MCAS isn't something covered in the available RA-focused information here, so it wouldn't be right to speculate on that connection without reliable data to draw from. A rheumatologist visit for your daughter is absolutely the right move.

What is well-supported is that RA does have a genetic component. If a parent has RA, a child is 2 to 4 times more likely to develop it themselves. That said, having a higher risk doesn't mean it's certain. Juvenile idiopathic arthritis (JIA) is the form of RA that affects children 16 and under. Doctors diagnose it when a child has pain and swelling in one or more joints for at least six weeks. Early diagnosis really matters here — it can help prevent lasting joint damage.

Some key things to discuss with the rheumatologist include:
- Your own RA diagnosis history, especially your early childhood onset
- Her current lab results
- Any joint swelling, stiffness, or pain she's experiencing
- Her hypermobility findings from the neurologist

Bringing a detailed symptom journal to her appointment could be really helpful in painting the full picture for the doctor.

August 5
A myRAteam Member

When I was 16 due to my RA and having mono they thought I had leukemia and this went on for about 3 months. Took 8 tests to determine it was just mono. 7/8 tests they told my mom I had leukemia in my legs and that I'd never walk again. So these high tests have some serious questions raised for me especially with her being histamine intolerant and hypermobile already.

August 5
A myRAteam Member

I am labeled as having seronegative RA.
My daughter has had extremely high alkaline phosphates, lymph number and percent , mono number and percent, EOS number and percent,low creatine, and many other markers.

August 5

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