This sounds like an incredibly overwhelming and frightening time, and it's completely understandable to feel uncertain about what to do next. You are dealing with so much, and your feelings are valid.
While this space is focused on RA-related support, what can be said is that RA and its comorbidities — like the ones you've Show Full Answer
This sounds like an incredibly overwhelming and frightening time, and it's completely understandable to feel uncertain about what to do next. You are dealing with so much, and your feelings are valid.
While this space is focused on RA-related support, what can be said is that RA and its comorbidities — like the ones you've mentioned — can be serious, and managing them requires a strong, coordinated care team.
Here are some steps that may help right now: Advocate for yourself and your care:
- Ask for a care conference — Request a meeting with all your specialists together, so everyone is on the same page about your treatment plan
- Ask questions — Don't hesitate to ask your doctors what options are still available to you, including any treatments not yet tried
- Seek a second opinion — You have every right to consult another rheumatologist or specialist about your RA and related conditions
- Talk to a palliative care team — Palliative care is not only end-of-life care; it also focuses on improving quality of life and managing symptoms at any stage
Emotionally:
- Lean on your support network — friends, family, and communities like this one who truly understand chronic illness
You deserve compassionate, thorough care. Please don't give up on advocating for yourself. 💙
July 9
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