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A myRAteam Member asked a question 💭
Seattle, WA

I’m hoping to hear from others who were diagnosed relatively young with rheumatoid arthritis.

Has anyone experienced fairly rapid progression—like developing finger deformities (crooking, shifting) within just a few years—even while being on medication?

I’m struggling because I’m doing what I’m supposed to do… taking the meds, trying to manage it… but I’m still in a lot of pain, and I’m seeing physical changes that are honestly really hard to process emotionally.

It’s making me question… read more

April 27
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A myRAteam Member

Kelly, hi. RA is challenging and confusing. What works for one person, does absolutely nothing for another. That being said, I can only speak from my own experience. Things were pretty rough until I found the right medication. It took 4 years and 5 meds until I finally started feeling better. It might be a good idea to speak with your rheumatologist about the pain, physical changes and a medication change. Advocate for yourself. Don't stop until you find something that helps. Hugs and best wishes to you.

April 27
A myRAteam Member

Good morning Kellyleasure,
So I would really talk to my rheumatologist because if you’re still in a lot of pain, it tells me that the medication’s aren’t working. I was on Humira which it never completely worked and so I told my rheumatologist so we tried Actemra both of which were self injections. The Actemra injection was working, but I still was having some discomfort maybe because I was overdoing it but then my insurance wouldn’t cover it anymore so I just started infusions with.Tyenne and so far the infusion is working and is less stress on your body and it’s like an hour once a month that I have. Oh yeah, and I was on methotrexate while I was taking Humira and Actemra along with originally folic acid, and then Leucovorin but I am no longer on those and I’m only on Tyenne. Also, I would keep an eye on what you’re eating if certain foods cause a flareup I would definitely steer clear them. I’m actually taking a turmeric supplement as well all organic. And because I was having problems with my thyroid, my endocrinologist suggested reducing/eliminating gluten because I had a really bad flare when I ate some pizza that was really full of gluten the dough you. So in a nutshell, watch what you’re eating and please talk to your rheumatologist because I feel like the medicine your on may not be working and believe me I’m not a doctor. I just believe that your pain should be decreasing. I hope this helps. God bless. Sorry for the typos and the rabbit trail.

May 7
A myRAteam Member

I wore a finger splint for a while before I found good treatment with a rheumatologist to control the RA

May 2
A myRAteam Member

rHello iellyleasure, I was diagnosed with RA at 24, Im sure I had RA before crooked and joints replaced in both hands
fingers, h

April 28
A myRAteam Member

Yeah, I definitely agree Ive taken three medications and about to start infusions because my insurance stopped paying for the one which really made me shake my head, but anyway definitely speak to your rheumatologist about your concerns and if the med isn’t working, let them know. It’s like why take something if it’s not working and I don’t know how your diet is, but you might wanna think about particular things you’re eating that cause flareups and stuff. And do your research.God bless.

April 27

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