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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is there anybody out there that decided not to take any medication for their RA?

A myRAteam Member asked a question 💭
Macomb, MI
February 23
 · 
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Answer Summary

Members shared deeply personal experiences responding to the question about managing RA without medication, with most agreeing that staying on... Read more

Members shared deeply personal experiences responding to the question about managing RA without medication, with most agreeing that staying on treatment is important to prevent lasting joint damage and disability. Several members described trying different medications like Enbrel, Orencia, and hydroxychloroquine, noting that some stopped working or caused difficult side effects, leading them to work with their doctors to find better options. A recurring theme was the importance of self-advocacy, with many members also using supplements like tart cherry juice and turmeric, along with physical therapy, diet changes, and careful vitamin routines to support their treatment.

A myRAteam Member

Bonds, I was on a medication, Actemra, for several months and it made me feel awful. I couldn't lift a coffee cup, button my clothes, snap/unsnap my bra, cut up my food, push the buttons on my appliances, etc. I was in tremendous pain. It was a terrible, scary time. New medication really turned things around. I have had to hold my RA meds due to surgery and illness. My RA symptoms came roaring back with a vengeance. For me, I know that it isn't possible to forego treatment. If I did, I believe it would result in complete disability. Also, I take these meds to help slow the progression of the disease on my entire body, not just my joints. It's a rotten disease. I hope you find something that helps you feel better very soon.

February 23
A myRAteam Member

I absolutely 💯 want my medications to halt the RA Damage to my body. I am just thankful that what I am taking is making my life better!

Very Grateful for Science, Research, Doctors and Medications! To each, their own. I don't push my thoughts or ways of thinking on anyone and I am a big believer in medicine & Research.

February 23
myRAteam

Are you wondering if it's possible to manage RA without medication?

While some people may consider not taking medication for RA, it's important to understand the risks. Without treatment, RA can cause progressive joint damage that may become irreversible, leading to painful or nonfunctional joints.

Why medication matters:

Show Full Answer

Are you wondering if it's possible to manage RA without medication?

While some people may consider not taking medication for RA, it's important to understand the risks. Without treatment, RA can cause progressive joint damage that may become irreversible, leading to painful or nonfunctional joints.

Why medication matters:

Medications like disease-modifying antirheumatic drugs (DMARDs) and biologics are designed to slow disease progression and prevent joint damage. Early diagnosis and treatment can help protect your joints from the immune system attack that characterizes RA.

The risks of going untreated:

Without medication to control RA, you may face:
- Progressive joint damage
- Increased pain and loss of function
- Higher risk of complications affecting the heart, lungs, and other organs
- Potentially shortened life expectancy

Alternative approaches:

While medication is typically necessary to slow disease progression, some complementary strategies may help manage symptoms alongside prescribed treatments:
- Physical therapy
- Exercise and maintaining a healthy weight
- Stress management
- Dietary changes
- Heat and cold therapy

If you're concerned about medications, talk openly with your rheumatologist about your worries. They can help you understand the benefits and risks of different treatment options and work with you to find an approach that addresses your concerns while protecting your long-term health.

February 23
A myRAteam Member

I stopped taking hydroxychloroquine because it was causing me hair loss and my body would stop responding to it. Meanwhile it didn't seem to help me all that much.

February 27
A myRAteam Member

I’ve met a few people with rheumatoid arthritis who chose not to take medication, usually because of side effects or personal preference. Most of them eventually reconsidered when symptoms worsened or joint damage progressed. RA can be unpredictable, and untreated inflammation can cause permanent damage even if pain feels manageable at times. It’s a very personal decision, but it helps to fully understand the long-term risks before deciding.

February 26

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