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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Utah

I guess the Rheumatologist is adding Leflonimide to the Teyenne. I've see a lot of people on here are on this. Can you let me know how this has helped or not?

November 6, 2025
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Answer Summary

Members shared a wide range of experiences with leflunomide in response to a question about adding it to Teyenne, with some finding... Read more

Members shared a wide range of experiences with leflunomide in response to a question about adding it to Teyenne, with some finding significant pain and inflammation relief while others had to stop due to side effects. A recurring theme was the importance of regular blood work to monitor liver enzyme levels, and several members also mentioned hair loss, stomach issues, and in some cases more serious reactions like neuropathy or elevated liver counts. Many community members emphasized that RA medications work differently for each person, encouraged trying the medication with close monitoring, and offered helpful tips like taking folic acid and starting at a lower 10mg dose.

A myRAteam Member

I do but my rheumatologist saw my mri and there was a lot more inflammation in my bones of my fingers that’s what’s causing the pain the swelling pins and needles I’ve cut a lot of stuff out even lost 15 lbs. but my dr is now sending a pre authorization to my insurance for Enbrel which I heard is a really good biologic just hoping I can afford after my deductible goes back to 0$ in January.

November 15, 2025
A myRAteam Member

Lauren, you could try and get help with your portion. There are grants for certain things. I have to pay a lot for my immunoglobulin infusion, but I make payments to the hospital. On my Teyenne I can get on the monthly payment for prescriptions through my insurance. On the Repatha I have a grant.

November 15, 2025
A myRAteam Member

Anyone had there fingers swell up like sausages and it feels like you’ve sprained your wrist and the pain doesn’t go away

November 13, 2025
A myRAteam Member

It is probably a "safer" dose. I feel great today, so I'm hoping the lower dose won't affect the efficaciousness of the drug. Time will tell. When I started the 20mg dose, I felt better in less than two weeks. It stays in your system for two years, so I think I've got some "banked" leflo in my system still.

November 11, 2025
A myRAteam Member

Hi Carol, 20I5 took it for 8 weeks and didn't help at all.... I hope it helps you!! 👍💕

November 7, 2025

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