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I have been taking Actemra for 4 months by iv infusion. Red dots the size of a pencil eraser. Rash under both arms. Red dots on hand, feet, arms, legs. Itchy and when scratched sling breaks open into a soar.
I am hope you are monitored by a Dr. or nurse when you get your infusions. I was on Remicade, and after five years, I got first a skin reaction, then I had diarrhea immediately after the next infusion, then on the fourth I vomited. They tried a fifth time, and I had an immediate shortness of breath, and they had to inject a fast-acting allergy med. That is the danger of biologics, developing a reaction to them that progresses. My Dr. wanted to keep giving me the infusion with an injection of the Benadryl, but I decided not to. I am told its common for biologics to react this way after five years. As Remicade was the most effective medication I have ever been on, I am regretting perhaps discontinuing it. Maybe it would have been safe with the Benadryl. Good luck with it.
Skin reactions and rashes can occur as side effects of RA medications, including biologics like Actemra. The symptoms you're describing - itchy red dots that break open when scratched - could be a concerning reaction that should be evaluated by your healthcare provider as soon as possible. During Actemra infusion therapy Show Full Answer
@A myRAteam Member sorry to hear that. When I was on Inflectra for almost two years I had to take Benadryl the day of my infusion and the nurse also gave me something in my iv before my medication. I think Actemra is finally starting to help a little after the fourth dose. Not sure if I can continue, I am scared of a bad allergic reaction.
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