I think in a way I'm grieving my old life. I have constant pain everyday. The methotrexate has reduced the inflammation but the pain remains. I struggle to do simple things and I have lost my independence, privacy and dignity. Its taken a huge toll on my mental health and I don't really have a good support network and it's made me feel quite alone. Has anybody else experienced this?
Thank you. I have slowed down a lot and I do need to accept this now so I can find a way of getting back to myself. Things will be different and I need to learn how to pace myself and say no. Thank you all for the support, I appreciate you all and wish you all the best. Take care of yourselves x
Good evening Amy,
I think Nancy and Gary are 100% on track, y’all that’s spot on great job.
Sending you plenty of Hugs and support, this is a great place to get information and support from people that have many years of experience with autoimmune diseases.
Like Nancy said she knows how you feel, Gary is right there, and I’m with you I’ve felt the same way.
I’m gonna use this for an example I had a doctor’s appointment this was maybe 6 months after I was diagnosed with RA, and we discussed how I was feeling and moving about, I said everyone is moving so fast, on the highway, in stores shopping, everywhere I go people move so fast, and then I said it’s not that everyone is moving fast it’s just that I’m slow.
I never gave up and I’m starting to get back to a new normal and my body is just a piece of equipment and equipment can be fixed with a lot of determination and working with my doctors, I’m moving forward and I’m picking up speed and gaining more energy again.
On the days when I feel malaise I accept it and document what I did prior, and if someone needs me for something I just say I’m sorry but I’m out of service, I don’t allow myself to Stress about it.
So be easy on yourself try and gain support everyone here is my RA support, that’s how I get through the pain, and finally be patient these meds take time and work very slow, work with the doctors they can’t see it and bloodwork and x ray’s are not always accurate let the doctor know how you feel.
Many hugs and love Warrior you can handle this.
Thank you for your reply. I will look into the condition more and what can have an effect on it and ways to reduce and improve symptoms. Im still learning about this so I can get a bit confused about why I feel certain ways. I will definitely book a gp appointment. I wish you all the best and thank you for your support and advice. x
Hi Amy. I feel you. I miss my old self too & feel like I've been robbed of the life I once had which does feel much like a grieving process. As there is no cure all we can do is try & have the best quality of life we can by trying to keep this disease in check & under control which is easier said than done. I feel like every day that I'm still adjusting as it is hard to accept the reality that this is my new normal. I am glad to have this support group for sure though. Sending hugs & positivity your way. 😊
@A myRAteam Member the Mediterranean lifestyle is not expensive. It focus on fresh produce, fresh herbs, beans, pasta, some dairy just enough for flavor not smothered, good yogurt, not the sugar ones, little meat , some fish and good olive oil. True meals are not expensive to make. They are simple ingredients. My family is from Italy and cooks this way. Always have. But the cooking from the region is several countries but it all centers around the same thing, nothing. Processed, no junk. And dessert is a treat, not daily. I hope this helps you out.