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Can You Share Your Experience With Rinvoq?

A myRAteam Member asked a question 💭
Utah

I remember some of you mentioned it previously. My daughter was put on it today.

September 13, 2024
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Answer Summary

Members shared their varied experiences with Rinvoq for rheumatoid arthritis and related conditions, with many reporting significant... Read more

Members shared their varied experiences with Rinvoq for rheumatoid arthritis and related conditions, with many reporting significant improvements in joint pain, swelling, and especially energy levels, though several noted the medication eventually stopped working after one to four years of use. Several members described practical challenges including needing to stop the drug before surgeries (which triggered painful flares), dealing with insurance coverage issues, managing minor side effects like cold symptoms or coughing, and concerns about contraindications for those with specific health histories like blood clots or heart conditions. A recurring theme was the frustrating trial-and-error nature of finding the right RA medication, with members expressing both hope when Rinvoq worked well and disappointment when it eventually lost effectiveness or had to be discontinued.

A myRAteam Member

Thanks to everyone for sharing this information. I have been thinking about going on this drug. I hope more people will contribute their experience.

September 13, 2024
A myRAteam Member

Rinvoq slightly better controls joint pain, stiffness compared to other meds I was on ( Methotrexate, Enbrel, Actemra, Orencia). But it significantly improved my energy level. That has been significant positive change.

September 17, 2024
A myRAteam Member

Hi Carol. I have been on Rinvoq for 3 months. I noticed a difference within 2 weeks. The swelling in my hands has gone. My monthly blood work is perfect with no high or low flags. I had very high liver enzymes with the other 3 meds I previously tried and had to stop taking them -methrotrexate, leflumonide and sulfasaladine. Rinvoq is the only med so far that did not effect my liver. In my last appointment my rheumatologist said I could now try and stop taking hyroxychloruquine and see how I do with just taking Rinvoq on it's own. I will see how I will do .

September 13, 2024
A myRAteam Member

I’m using Rinvoq over a year now, I find it that it’s helping me. Barley have pain like I use too. I started my walks too this year, I couldn’t do my walks before but since I used Rinvoq I’ve been active and going to fitness also..

September 13, 2024
A myRAteam Member

Carol, I was on Rinvoq for almost 2 years . It worked well with very few side effects. Maybe cold/flu symptoms once in a while. Then, it just stopped working and RA noticably worse again. On Humira next, generic equivalent here in Canada, and it did absolutely nothing so discontinued after 8 months. Now onto Actemra, but too soon to really tell.
Hope that helps. Good luck to your daughter.

September 13, 2024

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