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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 20, 2024
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Answer Summary

Members shared their earliest rheumatoid arthritis symptoms in response to someone seeking to understand initial warning signs, with... Read more

Members shared their earliest rheumatoid arthritis symptoms in response to someone seeking to understand initial warning signs, with experiences ranging from childhood foot pain and activity fevers to debilitating fatigue that made people fall asleep everywhere. Several members described hand and feet pain in their 30s that was initially mistaken for carpal tunnel, along with unexplained shoulder injuries, swollen joints, mysterious rashes, and IBS, often going years or even decades before receiving an accurate RA diagnosis. A recurring theme was the long and frustrating journey to diagnosis, with many members being seronegative and only confirmed through their positive response to steroids or persistence in seeking answers despite normal lab results.

A myRAteam Member

Pain...... fatigue! I thought it was stress.
I would literally fall asleep everywhere.. My husband said once you always look exhausted are you getting enough rest?????
I started Humira in 2019 it has helped me. Not as much as I would like but some help is good.

June 22, 2024
A myRAteam Member

Mine started( in 2014) with horrible pain in my shoulder , which turned out to be partially torn rotator cuff ( I'm not an athlete, nor do I do extreme workouts) . Concurrently , I had awful pain in hands and wrists , and like Monica, I thought it was carpal tunnel. My doctor sent me to occupational therapy for these issues. The Therapist strongly suggested I get tested for RA. My doctor did, and I was Sero Positive. Its been quite a journey

June 20, 2024
A myRAteam Member

Swollen, very painful hand at first. Thought it was a case of carpal tunnel. Nope, that was the beginning...

June 20, 2024
A myRAteam Member

I had terribly sore hands and feet in my late 30s. Diagnosed with inflammatory and erosive arthritis. Probably because my SED rates weren’t high. I had bunion surgery in my 50s. At 58, my PCP said my joints were ugly. He put me on an anti-inflammatory and, as needed, Tylenol 3.
In my 60s I developed knee, hip, back, and shoulder problems. My ortho doc suggested RA, but I didn’t see a rheumatologist until 70. Diagnosed with RA that very day. Sero negative.

Edit: I also had bilateral carpal tunnel in my late 30s.

June 20, 2024 (edited)
A myRAteam Member

Hands and feet at late 30s, then fever in my spine, hands and feet by 45, IBS and some weird rashes too.

Saw a rheumatologist at 54. Labs were normal. Sent me for an epidural steroid for my back and all my swelling, pain and inflammation all over reduced immediately. He said if I respond that favorably to steroids it's sero negative RA.

Yeh, long road. I'm 65 now.

June 20, 2024

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