It is in the clinical trial phase at this time but I believe there is approximately 800 of us that have it.
I was supposed to be in that study, but my BMI was too high 🫤 The info on it was very cool, though. I can't wait to see what comes out of the study.
I had Vagus Nerve Stimulator device installed as of 2008 for another health factor. Had no clue there were clinical studies for using the VNS with RA. I did just read an article on this in The Lancet that was quite interesting about the clinical testing and how the VNS has shown to be of a benefit.
I will be sending out a OneChart email to my RA specialist for his thoughts when he has a moment as I'm curious what his thoughts are on this activity.
I was told that I qualified because my numbers were so high. I won’t ever forget the lady coming in to the room with a huge smile on her face saying “ woo hoo “ you are in !! She was so happy for me like I had just won the lotto! She said “ you got in because you have extremely aggressive RA “ !! When she realized that I didn’t share her enthusiasm, she immediately started apologizing. She is a sweet woman so I knew she meant well, I was just a little overwhelmed because in that very same appointment, was when I was told I had RA. 😂. Good times…
I’d be interested in the rationale for use of this as I ve got problems associated with dysautonomia
I can honestly say that I was in remission for the first 8 months after receiving it. I have had approximately 4 flair ups in all but I blame that on me no longer taking the injections.. also, I stopped taking the methotrexate as well. I am in the process of finding another rheumatologist so that is partially the reason I’m not taking Enbryl. I need to have something to coincide with the Vegas Nerve Stimulator because I’m considered to be at the “ end stage “ of RA.
Long story short, I believe getting this as soon as possible after receiving the RA diagnosis will give others the best chance at beating ( not curing, sadly ) this awful condition we share here. I know for me remission feels very much like a cure. 🥰