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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Lansdale, PA

Still having tests to sort our the cause of my low wbc. I had a bone marrow biopsy ( neg for leukemia /Lymphoma. Next, another test to see if I have Sjogrens Syndrome ( neg for Sjogrens but markers were present for Lupus). So last week I had another round of bloodbook hopefully to rule out Lupus,but frankly I'm scared to death. I'm tired and frustrated, but thankful for my Rheumatologist & Hematologist or their diligence. 😔🥺

September 17, 2023
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A myRAteam Member

Its so frustrating waiting for answers and having sooooo many tests. I start to question how much they really know about RA and other issues that are similar in nature. I'm fearful, scared, tired and just want some answers. I am so glad to have this group and everyone to share my concerns. I'm trying to remain positive, but at times I feel defeated. I will keep pushing. Brian, I hope you are doing well. You are a very inspiring individual and I hope I can get to that place one day. Be well and stay well and continue to be a positive energy in this group.

September 19, 2023
A myRAteam Member

My low white blood count is due to having Evans Syndrome

September 22, 2023
A myRAteam Member

Hi Patti,

I'm sorry you're having to deal with all these tests trying to figure out where you stand. Some medications will lower your white blood cells. Are you on any medications for RA? I was first diagnosed with lupus, but that was wrong. I went for another opinion because of the amount of joint pain I had. It's good to get second, third and more opinions if necessary. Just something you may want to consider. I have found teaching medical centers to be my best option. Hope you feel better soon.

September 17, 2023
A myRAteam Member

Thank you so much. The prayers are greatly appreciated. Have a wonderful day.

September 21, 2023
A myRAteam Member

I Have both and Lupus seems to be more relevant. lupus seems to be getting worse I am also on HCQ and Azathioprine I have a cream for the rashes vaginal cream for UTI’S and every other month I swear I have an UTI and test is negative
My eyes well I need glasses for the glare so I dont get migraines and my fingers well seem to be getting deformed from RA I am not complaining just stating what is going on with my body and some days are great and I have to stay positive or I would be depressed and I dont want that for me
I will be praying for you as I do for all in this group

September 20, 2023

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Omaha, NE

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