I was diagnosed with RA at age 25 and have lived with the disease for over 40 years. Currently I am dealing with pain in my deformed toes. The bony protrusions in various toes rub adjoining toes and create sores. Amputating one toe on each foot could create more space but then allow for more deviation
Also each of my 2nd toes have curled under and are bent toward the outside foot. The right claw toes have moved under the 3rd toe which then presses the edge of the curled toe against the… read more
Hi! While I did not have an amputation, I am recovering from toe surgery two weeks ago. I have had a bunion for a while, due to the RA, and when I had a big flare in December, my big toe popped up right over the 2nd and 3rd toe. I couldn't wear shoes, I couldn't walk. I had to wait several weeks while my biologic got out of my system for immunosuppression before the orthopedist would do the surgery.
The big toe had to be fused to the joint under it, and my 2nd hammar toe had to have the tendon cut to unroll it and have it be straight. He thought he was going to have to do the 3rd hammar toe as well, but it isn't as bad. I am still no weight bearing for a long while (I am using a knee scooter as I can't do crutches because of the RA in my hands). I will have to have PT after that of course. But I should be able to walk without too much pain. My foot will be wider, so orthopedic shoes for me, but I will be able to get my foot in a shoe, which I couldn't before. I won't be able to bend my big toe because of the fusion, but it shouldn't hamper too much activity. I live in the mountains and hike and swim a lot, so foot function is important. I am already developing the same bunion on my other foot, and he gave me some suggestions for slowing that joint movement down.
I know this isn't exactly what you were asking for, but I am hoping some of it is helpful at least. Feel free to ask any questions if there is something you might find helpful to know.