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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Burleson, TX

I have bad RA and I also have fibromyalgia, too.
I was curious, do many of you lose your appetite when going through much pain or more than usual pain?

I am getting where I do not have much of an appetite at all and I do not need to lose weight.

Thanks!

November 17, 2022
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Reactions
A myRAteam Member

This comes in spells for me. I also have fibromyalgia and I’m getting worse with aging. I have developed multi sights of arthritis . This tells me that the typical medications do not help. We need tons more research on autoimmune diseases. I would love to donate to a fund for RA research but I cannot find a research center.

November 19, 2022
A myRAteam Member

I also have fibro and RA. I have lost my appetite and have lost a lot of weight.

November 25, 2022
A myRAteam Member

@A myRAteam Member, Johns Hopkins in MD has an excellent program. You can start your research before donating here - https://www.hopkinsarthritis.org/arthritis-rese...

November 19, 2022 (edited)
A myRAteam Member

Can you take something for nausea? Either otc or from your doctor? Maybe that would help you to eat more.I just read the side effects of Topamax. Loss of appetite is on there as a less of a side effect. Isn't that always the way with us? It seems like we always get the lesser side effects!

November 19, 2022 (edited)
A myRAteam Member

I think one of my seizure meds does not help, but it has made a big difference in my life with my seizures. We have not yet been able to find a replacement. That is Topamax.

November 18, 2022

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